National cancer survivorship initiative

The National Cancer Survivorship Initiative (NCSI) originated from the Cancer Reform Strategy (2007). The NCSI is a partnership between us and the Department of Health, and is supported by NHS Improvement.

Aim

The aim of the NCSI is to ensure that those living with and beyond cancer get the care and support they need to lead as healthy and active a life as possible, for as long as possible.

The NCSI partnership

In January 2010, the NCSI published a vision document (2010) [PDF] which summarised a range of evidence that suggested the current follow-up arrangements – which usually involve outpatient appointments at cancer centres – are not meeting all cancer survivors’ needs following treatment and do not provide value for money. These unmet needs of cancer survivors include medical, psychological, social, spiritual, financial and informational needs.

To date we have been working to develop and test initiatives around the vision and five key shifts to help health and social care professionals improve care and support for cancer survivors. These are focused on the five survivorship stages outlined in the NCSI report Living with and Beyond Cancer: Taking actions to improve outcomes 2013 [PDF].

  • Support from the point of diagnosis
  • Promoting recovery
  • Sustaining recovery
  • Managing the consequences of treatment
  • Supporting people with active and advanced diseases

We are prioritising four key areas of survivorship work, The Recovery Package, Stratified Pathways of Care, Physical Activity, and Consequences of Cancer and its Treatment and Patient Reported Outcomes Measures (PROMs). Read more about these on the NCSI website.

Find out more

For more information about this key partnership between Macmillan, the Department of Health and NHS Improvement visit the NCSI website.