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The Macmillan Survivorship Research Group

Over the past five years Macmillan has funded a number of projects and work streams at the University of Southampton, forming the Macmillan Survivorship Research Group (MSRG). MSRG's research has focused on understanding the issues affecting survivors of cancer including health and well-being following treatment and self-management of consequences of treatment.

In 2016, Macmillan and MSRG launched a unique programme of longitudinal research looking at patients' experiences across the cancer pathway for four different cancer types - HORIZONS. HORIZONS is a series of cohort studies of adults treated for non-metastatic cancer designed to explore their recovery following treatment and how they manage the consequences of cancer. HORIZONS builds on an existing longitudinal study run by the MSRG (CREW; ColoREctal Wellbeing) which is examining recovery post primary-surgery in around 1,000 colorectal cancer patients.

For more information on CREW and HORIZONS please see our active research grants page.

Our previous MSRG streams of work have focused on the following areas:

Stream 1

Understanding recovery and self management following primary treatment. The group is conducting a series of studies to further understand problems experienced following primary treatment.

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Stream 2

Co-creating and testing interventions to support self-management. The group has developed and is in the process of testing an online resource to manage cancer related fatigue (RESTORE). RESTORE brings together clinical knowledge and lay expertise for people who have completed treatment. This resource will offer tailored support and has been created in partnership with survivors, Macmillan partners, clinical teams and academic experts to maximise its relevance and reach.

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Stream 3

User involvement, including those typically under-represented. The group continues to develop ways to involve people typically under-represented in research (underpinning all their research activity), particularly older people, people living in remote areas, people from black and minority ethnic groups, people with low literacy and low socio-economic status.

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To find out more about the Macmillan Survivorship Research Group please contact Claire Foster at c.l.foster@soton.ac.uk or visit the group’s website.