Research and evaluation reports
Here you will find key examples of Macmillan's research and evaluation reports, which contain information about the cancer workforce and patient experience.
We study the cancer workforce to influence for the investments and improvements that cancer workforce needs now and, in the future, and plan how the Macmillan workforce plays a role in the wider workforce. Get access to our workforce reports for England, Scotland, Wales and Northern Ireland.
Cancer patient experience is on a par with clinical effectiveness and safety as a key strategic priority for policy makers and service providers. Macmillan supports this though our work on the National Cancer Patient Experience Surveys. Here you will find reports on the Cancer Patient Experience Survey results for all four nations.
Here you'll find research and evaluation reports by Macmillan and our partners.
Evaluation of the Advanced Specialist Practitioner care homes project
Date published: February 2022
This report brings together evidence from a two-year evaluation of the Barnsley Advanced Specialist Practitioner (ASP) care homes pilot project, funded by Macmillan Cancer Support and run in partnership with South West Yorkshire Partnership NHS Foundation Trust (SWYPFT). The pilot has aimed to provide enhanced care planning to care home residents in the last year of life, working with care homes directly and wider health services.
An independent evaluation of this ASP project in Barnsley was commissioned by Macmillan Cancer Support in 2019, to increase understanding of:
- the impacts of the ASP on high quality clinical and personalised holistic care and personalised choice in the last year of life
- what an appropriately skilled and integrated system working looks like
- the sustainability of personalised holistic care planning within the system.
Key findings- There are good indicators that the ASP role has supported a real improvement in End of Life (EOL) care for residents in care homes in Barnsley.
- There is work to be done to ensure that Advance Care Planning (ACP) for EOL takes place for people with months or a year or more to live.
- The role of the ASP is to train, support and coach care homes as well as to advise and potentially case manage complex cases. Having this dedicated and protected resource has really added value.
- The ASP role has been instrumental in a shift in how care homes are viewed within healthcare and a shift in how care home residents are viewed by GPs and others. The ASP sits within a wider framework that supports EOL care in homes.
Transforming Care After Treatment: Evidence and learning bulletins
Transforming Care After Treatment (TCAT) is a five-year RTS (Redesigning the System) programme funded by Macmillan Cancer Support. Focused on the care and support of people after treatment for cancer, TCAT is a partnership between the Scottish Government, Macmillan Cancer Support, NHS Scotland, local authorities and third sector organisations that aims to:
- Enable people living with cancer to play a more active role in managing their own care
- provide services that are more tailored to the needs and preferences of people living with cancer
- give people living with cancer more support to cope with the physical, emotional and financial consequences of cancer treatment
- improve integration between different service providers and provide more care locally.
- Edinburgh Napier University was commissioned by Macmillan Cancer Support in May 2014 to conduct a national evaluation of TCAT. This work includes a rolling programme of evidence and learning bulletins on specific topics, including:
Evaluation of the Glasgow RTS programme: Improving the Cancer Journey
Date published: April 2018
Findings from the second evaluation report on Improving the Cancer Journey (ICJ) in Glasgow are now available in full length and brief report format.
ICJ is a community-based multi-agency approach to care aiming to improve the outcomes of people affected by cancer in Glasgow by providing structured, individualised and integrated support.
This report builds on the previous evaluation report and looks in more detail at the impact of the ICJ on service users and at the partnership between the stakeholders involved in the programme's delivery.Executive summary 2018 (PDF)
Date published: September 2016
Findings from the first phase of evaluation fieldwork for the ICJ are still available in full length and brief report format.
Prehabilitation: evidence and insight review
Date published: August 2017
There is growing interest in prehabilitation across Macmillan Cancer Support, as part of the broader cancer rehabilitation pathways and a sense that it is an important and valuable aspect of cancer care.
This prehabilitation evidence and insight report provides a centralised synthesis of prehabilitation resources and evidence.
The report defines prehabilitation and outlines a prehabilitation model of three stages: pre-assessment, prehabilitation interventions and follow-up post-treatment with key interventions including physical activity, dietary support and psychological support.