What is advance care planning (ACP)?

Advance care planning (ACP) is a voluntary discussion between an individual, those close to them and their care provider(s). It enables people to plan for the future, ensuring their wishes are known when it comes to treatment and further care. It includes things like the sort of medical interventions they may or may not want if they become very ill and helps the person get the care that's right for them.

This process is referred to as advance care planning in England, Wales, and Northern Ireland, and anticipatory care planning in Scotland.

Who is advance care planning for?

Advance care planning is something that anyone might find helpful and reassuring, but can be particularly important to people who have a progressive illness or who are approaching end of life.

Here are some resources to help primary care professionals find relevant guidance around how coronavirus affects their patients.

The coronavirus crisis means more people might be thinking about creating an advance care plan. This is because people who are vulnerable to coronavirus due to a pre-existing condition can deteriorate quickly and become unable to communicate their wishes. We understand conversations with your patients about things like this can be difficult. We have more information to help with difficult conversations and coronavirus.

Advance care planning key messages

Advance care planning should:

  • be voluntary
  • be sensitive and timely, and at the level of understanding of the individual, loved ones and carers
  • be proactive, rather than reactive
  • involve shared decision making
  • involve the right people – family, multi-disciplinary professionals, if appropriate
  • be person-centred and include discussions about what matters to the individual
  • be documented and shared with family and health and social care professionals (with permission)
  • be regularly reviewed and updated in writing or if a person’s condition, personal circumstances or preferences change.

We also have information about advance care planning for people living with cancer. You may find this helpful to share with your patients.

Advance care planning resources

There are lots of resources available about advance care planning. To help you support your patients during this time, we've listed some coronavirus ACP specific resources, as well as some more general ACP guidance.

Coronavirus specific ACP resources

The General Medical Council has information on what advance care planning looks like during the coronavirus crisis. This includes answers to commonly asked questions about practising during an emergency.

Here are some coronavirus and advance care planning resources that are specific to different regions:

England

Scotland

  • Health Improvement Scotland’s ihub has an Essential Anticipatory Care Planning Toolkit. This has been developed to support health and social care staff with ACP conversations and includes information relating to coronavirus.

Northern Ireland

Wales

General ACP resources

Here are some advance care planning resources that are specific to different regions:

England and Wales

England

Wales

Scotland

  • The Health Improvement Scotland (HIS) website has a section on ACP guidance. This includes templates and videos.

Northern Ireland

  • The All-Ireland Institute of Hospice and Palliative Care have a palliative hub on their website. It includes booklets and checklists to help people plan ahead.

Information about advance care planning for patients

There are different things to think about when creating an Advance care plan. We have information for your patients about different ways they can plan ahead. You might find it helpful to share this with them.

Additional advance care planning resources

Care homes

People with learning difficulties

  • Beyond Words is a charity that provides books and training to support people who find pictures easier to understand than words. They have produced a booklet called Jack plans ahead for coronavirus.

How we can help

Macmillan Grants

If you have cancer, you may be able to get a Macmillan Grant to help with the extra costs of cancer. Find out who can apply and how to access our grants.

0808 808 00 00
7 days a week, 8am - 8pm
Email us
Get in touch via this form
Chat online
7 days a week, 8am - 8pm
Online Community
An anonymous network of people affected by cancer which is free to join. Share experiences, ask questions and talk to people who understand.
Help in your area
What's going on near you? Find out about support groups, where to get information and how to get involved with Macmillan where you live.