National Cancer Intelligence Network

Macmillan Cancer Support and the National Cancer Intelligence Network are working in partnership to:

• use data and information to push the boundaries of understanding of the whole cancer population, now and in the future, of the impact and costs of cancer and its treatment on patients, the wider community and the NHS, 
• work to enable wider health and social care services to extend the usage of this information to improve the care, experience and outcomes for patients by designing, testing and implementing better models of delivery

To help achieve Macmillan's ambition to reach and improve the lives of everyone living with cancer and inspire millions of others to do the same, we are working in partnership with the NCIN and have developed a Macmillan-NCIN work plan. The objectives of the work plan are to:

• provide high quality information on health and its determinants to decision makers who can make changes to improve the lives of the cancer population
• describe quantitatively the disease burden of cancer across the whole of the cancer pathway and to develop a strategic approach that will pave the way for large scale analysis across cancer types.
• identify key and develop new routine ‘cancer population statistics’.
• understand the needs of the cancer population, the health and social impacts of cancer (including cancer recurrence and metastatic disease) and the consequences of its treatment.
• understand the ‘cost of cancer’, understanding the cost of providing pathways and model the cost of optimal pathways of care.
• understand the linkages between clinical outcomes, patient experience and PROMs (patient reported outcome measures).
• scope data requirements for social care and identify potential sources for the development of these datasets (including the extent of provision and cost of providing social care).
• continue to develop relationships across UK nations and to access data and influence the range and depth of data collection and quality of recording, understanding what data is available and what the gaps are.

For more information about the partnership, work plan priorities and future work download the summary|.