How Nes found her way to living well with inoperable cancer

Story
Published: 25 July 2025
Nes shares her experiences of living with inoperable cancer, and the importance of exercise in living well with cancer. Her story offers hope and practical advice for others navigating life with incurable cancer.

Meet Nes

Living with inoperable cancer is a journey with uncertainty and questions. But it is also a journey that can have moments of joy and resilience. In this interview, Macmillan Digital Editor Ros speaks with Nes, who shares her story.

Why did you want to share your experiences?

I've been involved with Macmillan for a few years since I was diagnosed, and I've met many people with cancer or volunteering. They are ordinary people doing extraordinary things.

I want people to see that you don't have to do something grand to make a difference. You can be an ordinary person, living a happy life, and then suddenly, cancer hits you.

Cancer changes your life, but it doesn't have to be all bad. Lots of good things can come out of it, and you can still do great things with your life.

Why is hope important?

Living with hope in a positive way makes such a difference. Meeting someone in the street, smiling, and chatting can make you feel really good. Living with cancer is the same. It's about finding those moments of positivity and holding onto them.

How did your diagnosis during lockdown affect you?

It was traumatic. I remember my first appointment after the mammogram. The nurse and consultant asked why my husband wasn't with me. I said I was told to come alone. They let him join by loudspeaker. When I was told I had primary breast cancer, it was a shock.

Two weeks later, I found out it had spread to my bones and liver, making my cancer terminal. It was hard to process, especially during lockdown.

Nes, a lady playing golf.

How did you cope emotionally?

It was tough. I went through chemo, which was brutal. I had to find ways to stay positive.

By the end of 2021, I decided to retire from my full-time job. I started working part-time at a local golf club, which brought a new community and fitness into my life. It forced me to reevaluate my life in a good way.

What role has exercise played?

Exercise has made a massive difference. I didn't do Pilates before cancer, but a Macmillan nurse recommended it. I found it incredibly beneficial for my body and mind.

Swimming has always been my thing, it helps me stretch, breathe, and feel good. I now swim four to five times a week.

I believe exercise should be prescribed for people with cancer. It’s not just about medication, it is about finding activities that make you feel good.

I would urge anyone to find their thing exercise-wise, no matter what it is, try it and enjoy it.

What challenges have you faced with the language used around your cancer?

When I tell people I have secondary breast cancer, they often don't understand that it means terminal and incurable. They ask if I've had surgery or when I'll get the all-clear. It's frustrating.

I've learned to use language that makes it clear I have incurable cancer. Even some nurses have asked when I'll finish treatment, and I have to explain that I never will.

It is important to use language that accurately reflects your reality of living with incurable cancer.

Can you talk about the lottery of experience when it comes to living with cancer?

Living with cancer can feel like a lottery. You meet people with the same diagnosis, and their experiences can be vastly different. I've made some wonderful friends through my cancer journey, but I've also lost friends to the same disease.

It's hard not to feel guilty when you survive while others don't. It's a reminder that cancer is unpredictable, and everyone's journey is unique.

The support network you build, the treatments you receive, and even your mindset can all influence your experience. It's important to acknowledge this variability and support each other through it.

“In our culture we don't talk about cancer much, especially with women”

How has your cultural background influenced your experience with cancer?

My father was Indian, and my family on my dad's side is Indian. In our culture, we don't talk about cancer much, especially with women. When I visited family in Mumbai earlier this year, they would ask how I was, and I would say I was fine. We just pretended it wasn't happening.

It's a difficult topic, and it's not something we talk about openly. This cultural nuance has influenced how I communicate about my cancer with my family. It's a reminder that cultural background can shape our experiences and the support we receive.

What message would you like to share with others in a similar situation?

Living with inoperable cancer is not easy, but it is possible to find ways to live well. Surround yourself with support, take care of your body and mind, and never lose sight of the moments that bring you joy.

This is our journey, and we are living it one day at a time.

If you have any questions or need support

If you are living with incurable or secondary cancer, Macmillan is here for you.

Whether you need emotional support, practical tips on exercise or treatment, or just someone to talk to, you're not alone.

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