Raising Your Voice toolkit

Everyone should get the very best cancer care and treatment, no matter what. If you’re worried about the care you’re receiving, or feel you’re being treated unfairly, we can help.

What is the Raising Your Voice toolkit?

The Raising Your Voice toolkit is here to help everyone get equal cancer care as an NHS patient.

This toolkit was designed in London using the English healthcare system.

About the toolkit

This toolkit was formed from a partnership project between Well Versed Ink (CIC) and Macmillan Cancer Support’s London Engagement Team. It is a development from Macmillan’s ‘Mind the Gap: Cancer inequalities in London’ report and conference in December 2019 at London City Hall, as well as the ethnography stories gathered from seldom-heard groups living with cancer. Over the course of ten weeks, the two organisations hosted poetry, storytelling and campaigning sessions with a group of people affected by cancer based in London.

The first half of the sessions were focused on using poetry as a form of self-expression to create a safe space to share experiences and the second half of the sessions were focused on using those shared experiences to co-produce this toolkit.

The participants were mainly from a BAME background and therefore this toolkit has been designed to ensure BAME communities and other seldom-heard groups are able to create a change in their treatment or care without facing discrimination or inequality. While this toolkit was co-produced by a group of mainly Black, Asian and minority ethnic people experiencing issues accessing healthcare, it will be useful for anyone going through similar challenges.

If you have experienced changes, delays or cancellations to your cancer treatment or you are not receiving the care that you are entitled to, this toolkit is for you. If you need assistance using this toolkit or have any feedback for us, we’d love to hear from you at campaigns@macmillan.org.uk.

Understanding your cancer care rights

Do you have questions about your rights as a patient, accessing the treatment you want, or the standard of care you receive?

Read our guide to understanding your rights as an NHS patient.

Challenging conversations about your cancer care

Talking to healthcare professionals about cancer can be difficult. We have tips on getting the most out of consultations, writing letters to professionals, and preparing for a difficult conversation.

Read our information about challenging conversations.

Cancer support groups

There are many support groups across the UK and online to help you if you have concerns about your care or how you’re being treated.

Find out your cancer support group options and how to get in touch.

Contacting your MP about your cancer care

If you continue to have difficulties with your cancer care, you may wish to contact your local MP. Your MP could help in a range of different ways and it can also be a powerful way to share your story and experiences.

Follow our step-by-step guide to talking to your MP.

Empowering ways to drive change in your cancer care

At Macmillan Cancer Support, we work with Government and politicians across the UK to improve care and support at every stage of the cancer journey.

We encourage people living with cancer to share their experiences to help drive that change. Here are some of the ways you may be able to resolve issues you are facing in your cancer care or treatment or help others in the future.

  • MPs and local decision-makers such as NHS leaders will often read local newspapers to see what is happening in the local area. Sharing your story with a local paper might help you escalate your situation and resolve your issue.

    If you are a blogger you could repurpose a popular blog post about your cancer journey to include the issue you are facing and send this to a local newspaper. If you do not want to write an article or press release yourself, you can contact Macmillan to possibly share your experience with the media team.

Campaigning with Macmillan

Macmillan Cancer Support campaigns to help people living with cancer live life as fully as they can. Find out more about how our work makes a difference.

  • Sign up to become a Macmillan Campaigner

    As a campaigner, you will be joining a network of people across the UK campaigning for people living with cancer. By signing up we'll keep you up to date with opportunities to take action and the latest news from our campaigns.

    Sign up as a campaigner

  • Share your story on Macmillan’s Storybook

    Macmillan's Storybook is a place for people living with cancer and affected by cancer to share their stories as part of The Forgotten 'C' campaign. If you feel empowered by this toolkit and want to share your story, you can add your story to our Storybook.

    Share your story

  • Macmillan Digital Storytelling Project

    This is a series of online workshops supporting people affected by cancer to share their stories online. These stories are then turned into a video format, to create a powerful visual representation of people’s stories.

    Find out more

  • Contact the Campaigns team

    Contact the Campaigns team to share your experiences, issues or concerns regarding the toolkit.

    Email us