Research events and conferences in 2018

Members of the Evidence department attended events throughout the year to talk, present or share insights.

NCRI Cancer Conference, 4-6 November 2018, Glasgow

The National Cancer Research Institute (NCRI) Conference took place at the Scottish Event Campus in Glasgow on 4-6 November 2018.

It is the UK’s largest conference to showcase advances in cancer research, and provides a platform for researchers, clinicians and industry representatives to discuss and present their latest findings.

As one of 19 partner organisations, Macmillan was delighted to attend the conference to promote how we prioritise, conduct and share our research – which delivers real impact for people living with cancer.

NCRI Conference 2018 speakers

Speakers from the Macmillan sponsored session, including BBC journalist Nick Robinson.

What happened at this year's conference?

2018 conference programme

This year, the NCRI created an interdisciplinary programme in five streams:

  • Cancer discovery and underpinning research
  • Prevention
  • Early detection
  • Diagnosis and prognosis
  • Treatment and cancer control: living with and beyond cancer outcomes.

How did Macmillan take part?

  • We sponsored a session on 'The reality of cancer treatment consequences'

Co-chaired by Professor Diana Greenfield, Macmillan Consultant Nurse in Late Effects at Sheffield Teaching Hospital NHS Foundation Trust, and Elspeth Banks from Independent Cancer Patients’ Voice, this session included presentations from high profile speakers.

All of this year's speakers contributed expertise from research, clinical or patient perspectives to help enhance understanding of the late effects of cancer treatment, and how best to inform and support patients.

Nick Robinson from the BBC spoke at the session, drawing on his cancer experience to discuss treatment trade-offs from a patient perspective. Due to the impact of treatment for a lung carcinoid on his vocal chords he had to ‘Learn to live with and embrace uncertainty'. Read the full article on our blog.

  • We supported the launch of the top 10 UK research priorities in living with and beyond cancer

The NCRI has been working with the James Lind Alliance on a Priority Setting Partnership, bringing together patients, carers and health and social care professionals to understand the most important questions for researchers to answer.

Macmillan proudly partnered in this patient centred approach to determining research priorities, and we intend to focus our next research funding call around them. Further information can be found on the NCRI website and on our blog.

  • We presented our approach to change in health and social care services with findings from the Improving the Cancer Journey (ICJ) in Glasgow, including:

    1. How artificial intelligence and interactive visualisation technology can improve ICJ service provision.
    2. Sandra McDermott, ICJ Programme Manager presented compelling evidence to show how their patient-centred approach to assessing patients’ holistic needs ensures individuals get the right support. This was exemplified by the insights of Lorraine Andrew, an ICJ user who described the support she received from Macmillan services: ‘You feel like you’re falling off a cliff and they catch you’.
    3. Exploring ‘concern severity’ and predictors of concern among cancer patients using ICJ, and the differences in severity between initial assessment and follow up as a result of using the service.
  • We asked delegates what research impact means to them, at our stand, and on Twitter using the hashtag #researchimpact

For Macmillan, research impact means the research we fund benefits people affected by cancer by improving treatment and care and empowering people, so it was great to see comments that we are: ‘Creating change’, ‘Changing things for people to improve services and outcomes’ and ‘Supporting better shared decision making’.

Check out our Research Impact Framework for further information.

  • We worked alongside colleagues from the Macmillan Information and Support Service (MISS) team

Betty the MISS bus was onsite throughout the conference, and our MISS team was on hand to answer delegates’ questions on the medical, financial, emotional and practical support we can offer.


Macmillan-funded research

We shared Macmillan-led, joint research and research funded by the Macmillan Research Grants Scheme. This included e-posters, physical posters and presentations on:

  • Analysis of the Cancer Workforce Census, which collected data on the size, distribution and support needs of the cancer workforce in England.
  • The challenges of returning to work when you have cancer, based on a leading UK dataset.
  • Joint analysis with NCRAS on the number of people living with treatable but not curable cancer.
  • Joint research with Public Health Wales into the prevalence and outcomes for people with cancer and other chronic health conditions.
  • Making the case for prehabilitation in cancer care.
  • Research from the Scottish Routes from Diagnosis framework – investigating: palliative opioid prescribing with data, common comorbidities and survival differences of people with multiple cancer diagnoses.
  • The outcomes of completing the Macmillan Quality Toolkit in Scottish GP Practices.
  • Research from University of Southampton:
    • ColoREctal Wellbeing (CREW) study, including key results from the study at five years highlighting the challenges of living with and beyond colorectal cancer.
    • HORIZONS study, reporting on progress during the first 22 months of recruitment in its research into the short, medium and long-term consequences of a cancer diagnosis and its treatment.
  • Research from the University of Birmingham’s EPiC study evaluating patient reported outcomes, protocol content and reporting in UK clinical trials.
  • Results from the five-year RTS (Redesigning the System) Transforming Care After Treatment (TCAT) programme exploring cost effective solutions to resource use. Evidence and learning bulletins are available on our website.

Further information about our charity's research and funding partnerships, including our latest research publications and posters, can be found on our website.

Public Health England’s National Cancer Registration and Analysis Service: Cancer Data, Outcomes and Services conference; 20-21 June 2018; Manchester

In June, members of the Evidence department represented Macmillan at Public Health England’s Cancer Services, Data and Outcomes Conference in Manchester. This annual two-day event allows us to promote how Macmillan is using data, research and evaluations to make an impact and drive improvements in cancer care and support.

The conference attracts prominent members of the cancer data community, researchers, policy makers and clinicians. It provides an important platform to raise Macmillan’s profile as an expert on the 2.5 million people living with cancer in the UK, and the data partnerships we maintain across the UK.

The conference explored how data is being used to prevent, diagnose and help treat people with cancer using research from leading experts, as well as how novel data sets, sources and innovations in the use of cancer data can help make changes to service delivery and quality of patient care.

Macmillan was heavily involved in delivering sessions during the conference, we:

  • Sponsored a Q&A workshop on data access in the age of GDPR, opt-out and informed choice.
  • Presented posters on the latest Macmillan-led, Macmillan-funded and joint research with national cancer registries. Colm Burns (Evidence Officer, Northern Ireland) received the Runner Up Prize for Best Scientific Poster for his work on ‘Exploring the caseload, activities and outcomes of a regional acute oncology service’ [PDF].
  • Chaired parallel sessions on using data across the pathway, patient experience and outcomes, quality of life and living with and beyond cancer.

Macmillan-funded researchers also delivered the following programmed sessions:

  • Reviewing quality of life following colorectal cancer surgery.
  • Impact of prior health on predicted survival of melanoma.
  • Aspects of patient experience that predict satisfaction with care (speed presentation). Read the news coverage on the Medical Xpress website

As always, the event was well attended by members of the cancer data and research community and cancer patients and representatives. For more information on the conference and any downloadable slides, please visit the Public Health England website.

Macmillan evidence staff stand behind a Macmillan-branded stall with leaflets and speak to conference attendees.