People affected by cancer are at the core of the Macmillan Improvement Programme for Brain Tumour and Central Nervous System (CNS) Cancers. Meaningful involvement from people affected by cancer is ensuring we understand the reality of life for people living with this rare and complex cancer.
The complexity of brain tumours and CNS cancers, and the consequences of treatment, can be overwhelming. People affected by cancer have told us they need more support in adjusting to life after treatment, knowing what to expect, where to get support for friends and family and understanding what’s normal.
Living with and beyond a brain tumour focuses on the quality of a person’s life after treatment has ended. The devastating impact of a brain tumour or CNS cancer diagnosis goes beyond the individual with the diagnosis. Family, friends and carers also require support and information before, during and after treatment. We know fantastic support services available during and after treatment exist and can make a huge difference to people affected by cancer.
Working together with health and social care professionals and other partners we are working to improve the whole cancer experience from early diagnosis, treatment, living with and beyond cancer and end of life care.
We want everyone affected by this form of cancer to have equal access to high quality information and support closer to where they need it.
The Macmillan Improvement Programme for Brain Tumours and CNS Cancer is working with the NHS in the Vale of York, Hull, East Riding, North Lincolnshire, North East Lincolnshire and, Scarborough and Ryedale, who are also the programme’s host.