Macmillan Cancer Partnership in Nottinghamshire

The Macmillan Cancer Partnership in Nottinghamshire is working to improve local cancer services. It aims to address the growing number of people surviving and living with and beyond a cancer diagnosis.

More people than ever before are surviving cancer in Nottinghamshire. In 2012 there were 26,500 people known to be living with and beyond a cancer diagnosis and this number is set to double by 2030 to over 51,500 people.

About the programme

The Macmillan Cancer Partnership in Nottinghamshire is a £3.5 million cancer improvement programme designed to transform cancer care across the county.

The partnership includes Nottinghamshire health and social care services, Macmillan Cancer Support and other local voluntary organisations. The pioneering programme aims to improve local cancer services and address the growing number of people living with and beyond a cancer diagnosis.

The programme includes 23 individual projects, all focused on the service developments in Nottinghamshire related to living with and beyond a cancer diagnosis. Some of these are complex redesigning the system (RTS) programmes, while others are smaller shorter-term projects and pilots. The projects are all developing and testing out new ways of providing help and support for people affected by cancer.

The partners working alongside Macmillan include Nottingham City CCG, Newark and Sherwood CCG, Mansfield and Ashfield CCG, Nottingham University Hospitals NHS Trust, Sherwood Forest Hospitals NHS Foundation Trust, Nottingham CityCare, Boots UK, Self Help Nottingham and Notts County FC Football in the Community.

Patients and carers are closely involved in the development of these news services. Several events and workshops have taken place with over 100 people affected by cancer, and health professionals, sharing their views and experiences to help shape our work.

They have identified four priority areas for the partnership:

  • Information and support
  • Managing my condition
  • Professionals working with me
  • Work [PDF]

The partnership’s aims are to:

  • Raise the public and professional profile of the work of the partnership.
  • Influence and enable all cancer service development activity across the area.
  • Develop expertise and knowledge around the Living with and Beyond Cancer (LWBC) agenda.
  • Contribute to local capability and capacity in delivering the challenges of cancer.
  • Learn and share experience, information and insight from each other, including patients and carers.
  • Disseminate and sustain the partnership, through a continuous process of advocating and sharing innovation.
  • Evaluate the Macmillan Cancer Partnership model of co-production and collective leadership.

Boots Supporting People Affected by Cancer volunteering service

This service is delivered by Boots volunteers. They  offer befriending and practical support in the home to people affected by cancer and carers, after treatment or at the end of life.

Partners: Macmillan, and Boots.

Clarita Pymm smiles at the camera

Acute Oncology Service

The service aims to ensure that cancer patients arriving in A&E with cancer or treatment complications receive the care they need in Nottinghamshire. The service is comprised of oncology and haematology consultants and clinical nurse specialists. The role also encompasses delivering education and study days to help acute medical, A&E and other health care professionals deal with cancer patients who are admitted to non-oncology areas. The Cancer Admissions and Triage team also support a 24-hour 7-day Rapid Response line for GPs and other health professionals to advise patients experiencing problems.

Partners: Macmillan, Nottingham University Hospitals NHS Trust, and Sherwood Forest Hospitals NHS Foundation Trust.


Cancer Pathways Redesign Programme

This project aims to improve patient outcomes and experience by redesigning cancer care follow-up pathways in breast, colorectal, gynaecological, lung, upper GI and urological cancers.

The new pathways offer tailor-made patient care. They include Holistic Needs Assessments (HNAs) and treatment summaries to ensure support for patients continues when treatment ends, and to avoid clinical deterioration. It will also empower patients to self-manage following treatment and signpost them to other support services and extended members of the cancer team.

For more information on this project contact Macmillan Cancer Pathways Programme Manager Lisa Janiec.

Partners: Macmillan, Nottingham University Hospitals NHS Trust, CCGs and Sherwood Forest Hospitals NHS Foundation Trust.

Lisa Janiec smiles at the camera

Cancer Pathways Redesign Programme at Sherwood Forest Hospitals NHS Trust


Chemotherapy Late Effects Pilot Service

This project aims to support people suffering long-term effects of chemotherapy treatment, such as heart problems, infertility, liver and kidney problems, osteoporosis, fatigue or other health conditions. Specialist chemotherapy nurses will offer advice and guidance and refer patients onto other services so they can enjoy a better quality of life. The service is the first of its kind in Nottinghamshire.

For more information on this project please contact Dr Judy Christian.

Partners: Macmillan and Nottingham University Hospitals NHS Trust.


Children, Teenagers and Young Adults' Late Effects Service

The project focuses on implementing survivorship principles at the end of treatment for young adults, teenagers and children living in Nottinghamshire.

Tailored follow-up care and support, including the Recovery Package, care plans, wellbeing clinics and signposting to local services and support help to maximise life chances and deal with long term consequences of cancer on areas such as fertility and education.

Partners: Macmillan, and Nottingham University Hospitals NHS Trust.


Early Diagnosis Project

The Early Diagnosis Project’s aim is to increase uptake of bowel screening across Nottingham City for people aged 60–74, which is slightly below the national average. The project will raise awareness through training days with GPs, nurses and health professionals and promotion through flyers and events.

Partners: Macmillan, Nottingham City CCG, and Self Help UK.


Electronic Holistic Needs Assessments (eHNA) Pilot Projects


Head and Neck Cancer Pathways Redesign Project

This programme will deliver more joined up care for head and neck cancer patients & carers at Nottingham University Hospitals (NUH) to ensure patients see the right specialists at the right time in a more informed manner. This includes development of key areas of the service:

  • Greater intervention at the point of diagnosis by speech and language therapy and dietetics
  • A new dedicated website for all things head and neck cancer and more
  • The successful development and expansion of a head and neck cancer volunteer network offering buddy and befriending support to all patients and carers
  • The implementation of the new cancer care coordinator role to further proactively support the cancer journey
  • Redesign of the laryngectomy patient pathway, offering more intervention and support for this patient pathway in recognition of the complex support that patients and carers require.

Partners: Macmillan, and Nottingham University Hospitals NHS Trust.

Chandni Thaker smiles at the camera

Macmillan Beyond Diagnosis Project

The Macmillan Beyond Diagnosis project gives people affected by cancer and carers living in Nottingham City, Mansfield, Ashfield, Newark and Sherwood access to a befriending and one-to-one practical support service. Run by volunteers, the service works in partnership with Self Help Nottingham and is available to anyone affected by cancer at any stage after their diagnosis. It particularly benefits those who have finished treatment and who may be suffering from the long-term effects of cancer, including loneliness.

More information on the Self Help UK website.

Partners: Macmillan, and Self Help UK.


Macmillan Cancer Pathways Project


Macmillan CARE Programme (Cancer and Rehabilitation Exercise)

The Macmillan CARE Programme is an exercise programme for people living with cancer. Aimed at patients who have finished treatment to help them stay active and healthy, cope with the side-effects of treatment and reduce the chances of re-occurrence. The project also enables them to meet other people who have been affected by cancer.

For more information on this project visit the website.

Partners: Macmillan, and Notts County FC Football in the Community.

Emma Trent smiles at the camera

Macmillan Communication, Health and Well-being Group for Laryngectomees

The Macmillan Communication, Health and Well-being Group for Laryngectomees supports people who are diagnosed with advanced cancer of the larynx (voice box). The team consists of a Macmillan speech and language therapist and a Macmillan physiotherapist who help patients who have lost their natural speaking voice to manage their health and social needs beyond the hospital environment.

A series of group meetings teach patients how to communicate effectively, reduce the risk of re-occurrence and restore a sense of well-being to help them overcome isolation and return to work.

Partners: Macmillan, and Nottingham University Hospitals NHS Trust.


Macmillan SCOPES Oncology Project

Macmillan SCOPES is a pilot project for people aged over 70 who are affected by gastrointestinal cancer. The multi-disciplinary team ensures the patient is in the best possible health before any treatment starts to improve recovery chances. 

The project has received further Macmillan funding to set up a second clinic and extend work across both hospital sites.

For more information on this service contact SCOPES Project Manager Heather McCormack.

Partners: Macmillan, Nottingham University Hospitals NHS Trust, CCGs and Sherwood Forest Hospitals NHS Foundation Trust.


Mid-Nottinghamshire Cancer Services Redesign Programme

This project aims to treat cancer as a long-term condition and ensure that support for patients continues when active treatment ends in order to avoid clinical deterioration. By redesigning follow-up pathways for key tumour sites, and implementing Holistic Needs Assessments, patients will receive tailored care, which will continue after treatment ends through community and primary care services. The project will also encourage patients to self-care so they can live a full and healthy a life as possible with and beyond cancer.

For more information on this project contact Macmillan Cancer Service Development Manager Ruth Willis.

Partners: Macmillan, and the Mid Notts Better Together Transformation Programme.


Nottingham Radiotherapy Late Effects Service

This unique clinic opened its doors in September 2014 and is run by highly qualified and trained Macmillan radiographers. The clinic looks at the patient holistically (using a recognised scoring tool), offering advice where appropriate or recommendations for referrals when needed via the GP. We aim to offer a wide range of support and guidance regarding bowel and bladder problems, sexual dysfunction, pain and psychological issues to name but a few. Patients can book themselves directly into the clinic by phoning the Information and Support telephone number.

The clinic also takes referrals from GPs, hospital doctors, cancer nurse specialists and other allied health professionals within the hospital and community. After the initial consultation (during which a care plan will be discussed), patients are offered a follow-up appointment 2-3 months later to assess side effect severity. GPs are informed about the clinic date and outcome in order to maintain continuity of care.

For further information please contact Emma Hallam or Liz Stones on the Information and Support telephone number 0115 9627976. 

Partners: Macmillan, and Nottingham University Hospitals NHS Trust.


The Macmillan Cancer Insight and Intelligence Project

The Macmillan Cancer Insight and Intelligence Project was delivered in partnership with Self Help UK. It involved mapping the cancer support services, including self-help groups, across Nottinghamshire to identify the gaps in service provision and examples of good practice. The findings will help to further develop support services to better meet local need. 

For information on local self help and support groups visit www.selfhelp.org.uk/directory

Partners: Macmillan, and Self Help UK.


The Macmillan Nottingham Cancer Support Service

The Macmillan Nottingham Cancer Support Service offers face to face and telephone support and advice to people affected by cancer living in Nottingham City. The team of nurses and assistant practitioners work alongside the Community Macmillan Specialist Team to deliver support which is tailored to their individual need. The aim is to help people affected by cancer with their long-term health and wellbeing needs to live well with and beyond cancer.

For more information about the service contact Abi Powell.

Partners: Macmillan, and Nottingham CityCare.


The Macmillan One2One Support Project

The Macmillan One2One Support Project provides emotional and practical support to young people aged 18 – 30 who are currently being treated for cancer or have finished treatment. Support is provided by fully trained One2One volunteer support workers, also aged 18-30, and is available to young people living in Nottinghamshire and Leicestershire. Examples of support include accompanying young people to appointments, having a chat over coffee or helping with practical tasks such as shopping.

For more information about this service please contact Macmillan Clinical Nurse Specialist for Long Term Survivors of Teenage and Young Adult Cancer, Laura Cutler.

Partners: Macmillan, Self Help UK and the East Midlands Teenage and Young Adults Integrated Cancer Service


The Macmillan Psycho-Oncology Service

The Macmillan Psycho-Oncology Service offers specialist psychological support to lung, haematology and head and neck cancer patients living in mid-Nottinghamshire. The two-year pilot is the first of its kind in Nottinghamshire. The team have set up a website for easy access to self-help material. They also offer training to health professionals to help them recognise symptoms of psychological distress (e.g. anxiety, depression) in their patients and deliver basic cognitive behavioural interventions to improve mood and quality of life.

For more information about the service or to access self help material visit the website and contact Sanchia Biswas.

Partners: Macmillan, Sherwood Forest Hospitals NHS Foundation Trust and Nottinghamshire Healthcare NHS Foundation Trust.