Lymphoma stories about diagnosis
"My Macmillan nurse sat with me as I was being diagnosed. She was always available to be an extra friendly smile." - Toby, diagnosed with Hodgkin lymphoma
Why did you go for tests?
"The lump came up out of nowhere, under my chin on my neck. I thought it was an abscess on my tooth but then I was referred to the haematology department."
- Terry, diagnosed with non-Hodgkin lymphoma
"I had a huge swollen neck on one side and decided I would see my GP who, after initially sending me home, called me up and booked me in to have a biopsy."
- Toby, diagnosed with Hodgkin lymphoma
"I smiled when I finally got the cancer diagnosis, which might seem strange, but at least now I knew what was wrong. It was scary not knowing what was wrong with me."
- Leslie, diagnosed with non-Hodgkin lymphoma
"I smiled when I finally got the cancer diagnosis, which might seem strange, but at least now I knew what was wrong." - Leslie, diagnosed with non-Hodgkin lymphoma
What helped when you were diagnosed with lymphoma?
"When you are diagnosed with cancer, there are so many thoughts, fears, worries and uncertainties constantly swirling around your head that it nearly explodes. You have to find a way to cope with it. My method of dealing with it has been to write a blog chronicling in detail my story."
- Christina, diagnosed with non-Hodgkin lymphoma
"Alison was my Macmillan nurse. She sat with me as I was being diagnosed and made sure I had somewhere to sit while waiting for family to arrive. Alison was always available to be an extra friendly smile when I entered the waiting room."
- Toby, diagnosed with Hodgkin lymphoma
"I felt scared. I didn’t know what was coming and I felt a bit lost as well. Macmillan were there for me from the start."
- Megan, diagnosed with Hodgkin lymphoma
More information about lymphoma
Support during diagnosis
Macmillan is here to support you. If you would like to talk, you can:
- call the Macmillan Support Line free on 0808 808 00 00
- chat to our specialists online
- visit our Hodgkin lymphoma forum or our non-Hodgkin lymphoma forum to talk with people who have been affected by lymphoma, share your experience, and ask an expert your questions.
Share your experience
By sharing your experiences with us, you can help influence Macmillan's work and inspire more people to do whatever it takes for people living with cancer.
Ways to get involved
If you are living with or have been affected by cancer, there are many ways you can get your voice heard. Sharing your experience as part of the cancer voices community, sharing your story with the media or giving advice on our Online Community, are all powerful ways to help make the future better for people living with cancer.
Tag: CTYP, DGN