Things have changed a little bit since getting my new diagnosis, two-and-a-half years ago. Life isn’t quite as easy for me. There are times when I'm not very well, and I have to take to my bed.
When we want to go somewhere, I have to think more about where we’re going, whether I need to take oxygen or if I’ll need a wheelchair in case I get tired. But I suppose that’s a small thing in comparison – I often think it could be worse.
The advice I would give other people is don’t change. Just keep doing things exactly as you have done. I think just be open, honest and up front, and tell people the truth. Carry on your life as normal.
Obviously, there are going to be ups and downs. There are going to be times that are really hard. But you cross that bridge as it arises. You just have to live your life.
I am quite stubborn, that’s how I am. When I’m sick, I’m very keen to get up out of bed and start doing things again, much to everybody else’s dismay!
When I'm feeling really bad my Macmillan community nurse Mandy, is always my first port of call. She does exactly what I want. She knows I'm very straight and to the point, and if I think she’s getting a little bit ahead of herself sometimes, I’m like, ‘No, that’s not happening.’ You know, I tell her. I love that she’s there through all of it.
Sadly, Claire died in February 2015. We'd like to thank her family for allowing us to continue sharing her story, so others can benefit from Macmillan's support.