What happens to the information collected, and what are your choices on how this information is used?Cancer registration FAQs
We had two patient representatives on our review panel and we held four patient engagement events: two in London, one in Manchester and one in Leeds.
We also held a workshop specifically for members of Use MY Data and Independent Cancer Patient Voices, groups with a particular interest in the use of cancer patients’ data. For those who were unable to attend the engagement workshops we ran an in-house survey, which received 303 responses.
In order to provide more robust evidence, we commissioned Ipsos MORI to conduct a survey of 1,000 people with cancer and 1,000 members of the general public.
- Read the in-depth findings from Ipsos MORI 'Perceptions of the cancer registry' [PDF, 1.18MB]