People diagnosed with cancer are automatically included on the registry but can request that their data is removed if they wish.
Information about a person is included in the national cancer registry when they have been diagnosed with cancer. A small number of people also have their information included in the registry because they are diagnosed with certain conditions that can lead to cancer or their doctor suspects they may have cancer and sends them for further tests.
This process currently happens automatically, with information coming directly from hospitals and laboratories. This means the information is available in a timely fashion and its reliability can be checked and improved quickly. It also ensures that information about people who are diagnosed with cancer very late or who only survive for a short time is also collected.
People can choose not to have their information used by the cancer registry, and ‘opt-out’, if they prefer. They can do this by emailing the cancer registry (firstname.lastname@example.org), or by writing to: Director, National Cancer Registration Service, Public Health England, Wellington House, London SE1 8UG.Close