Macmillan Cancer Partnership in Nottinghamshire

The Macmillan Cancer Partnership in Nottinghamshire is a £6 million cancer improvement programme working to transform cancer services across the county.

There are 4,484 new diagnoses of cancer in Nottinghamshire every year and more people than ever before are surviving cancer. In 2014, 28,000 people in Nottinghamshire were known to be living with cancer and this number is set to double by 2030 to over 55,700 people.


Working in partnership to improve care

Working alongside Macmillan are Nottinghamshire health and social care services, and local voluntary organisations.

Together the partners are delivering 23 individual projects and services to support the growing number of people living with cancer. Some of these are complex redesigning the system (RTS) programmes, while others are smaller shorter-term projects and pilots.

The projects are all developing and testing out new ways of providing help and support for people living with cancer.

The partners working alongside Macmillan include Nottingham City CCG, Newark and Sherwood CCG, Mansfield and Ashfield CCG, Nottingham University Hospitals NHS Trust, Sherwood Forest Hospitals NHS Foundation Trust, Nottingham CityCare, Boots UK, Self Help UK and Notts County FC Football in the Community.

Patient involvement

Patients and carers have been closely involved in developing the new services through a series of events and workshops.

They have identified four priority areas for the partnership:

  • Information and support
  • Managing my condition
  • Professionals working with me
  • Work

Find out more about our priority areas [PDF].

To find out more about patient involvement in the Macmillan Cancer Partnership read our report [PDF].

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Our aims

The partnership aims to:

  • Raise the public and professional profile of the work of the partnership.
  • Co-ordinate and integrate all service development activity across the area.
  • Support the development of expertise and knowledge around the cancer agenda.
  • Support, influence and facilitate local capability and capacity to deliver the challenges of cancer care.
  • Learn and share experience, information and insight from each other, including patients and carers.

This partnership aims to put people living with cancer firmly at the heart of decision making when it comes to shaping their local cancer services.

Sue Sanderson, Macmillan Partnership Manager

How our partnership is changing lives

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A group of people in green Macmillan t-shirts pose in front of a tram with a fundraising bucket.

May 2018

Nottinghamshire trams go green to celebrate one million pound fundraising campaign for Macmillan.

Acute Oncology Service

The service aims to ensure that cancer patients arriving as an emergency with cancer or treatment complications receive the care they need in Nottinghamshire. The service is comprised of oncology and haematology consultants and clinical nurse specialists. The role also encompasses delivering education and study days to help acute medical, A&E and other health care professionals deal with cancer patients who are admitted to non-oncology areas. The Cancer Admissions and Triage team also support a 24-hour 7-day Rapid Response line for GPs and other health professionals to advise patients experiencing problems.

Partners: Macmillan, Nottingham University Hospitals NHS Trust (NUH), and Sherwood Forest Hospitals NHS Foundation Trust (SFHFT).


Boots Supporting People Affected by Cancer volunteering service

This service is delivered by volunteers (Boots employees and also open to anyone in the local community who would like to support). They offer befriending and practical support in the home to people affected by cancer and their carers, post-operation or during treatment. 

Practical support can include household tasks such as ironing, vacuuming or even the weekly food shop.  The volunteers can also offer emotional support and signpost appropriately.

Partners: Macmillan, and Boots.

Clarita Pymm smiles at the camera

Cancer Pathways Redesign Programme

This project aims to improve patient outcomes and experience by redesigning cancer care follow-up pathways in breast, colorectal, gynaecological, lung, upper GI and urological cancers.

The new pathways offer tailor-made patient care. They include Holistic Needs Assessments (HNAs), care plans and treatment summaries to ensure support for patients continues when treatment ends, and to avoid clinical deterioration. It will also empower patients to self-manage following treatment and signpost them to other support services and extended members of the cancer team.

As part of the collaborative working with primary care, local Macmillan GPs have developed an enhanced cancer care review process utilising a newly developed electronic template [PDF], educational video, patient prompt tool [PDF] and Recovery Package FAQs [PDF].

Partners: Macmillan, Nottingham University Hospitals NHS Trust, CCGs and Sherwood Forest Hospitals NHS Foundation Trust.

For more information on this project contact Macmillan Cancer Pathways Programme Manager Lisa Janiec.

Lisa Janiec smiles at the camera

Cancer Pathways Redesign Programme at Sherwood Forest Hospitals NHS Trust

The programme aims to establish new, improved follow up care pathways for people affected by cancer. By working with local health and social care organisations, patients and carers in Nottinghamshire, it will improve the outcomes and experiences of people living with and beyond a cancer diagnosis. 

The programme will utilise the Holistic Needs Assessment to establish both physical and emotional needs for each patient at appropriate stages of their journey, enabling them to live as healthily and actively as possible for as long as possible.

Partners: Macmillan and Sherwood Forest Hospitals NHS Foundation Trust.

For more information about the programme contact Heather McCormack, Macmillan Cancer Project Lead .

Headshot image of Helen smiling.

East Midlands Brain Metastases Service

This specialist team provides advice and support to people affected by brain metastases and their families. The service is the first of its kind in the region and aims to improve care for people with secondary brain tumours.

The multi-disciplinary team includes doctors, nurses and radiographers who meet weekly to discuss and assess the needs of a patient referred to this service. The team then provide an individual holistic care plan for these patients.

Funded by Macmillan, this novel, high quality service will deliver patient-centred care closer to home and fills a huge gap in care for people with brain metastases.

Partners: Macmillan and Nottingham University Hospitals NHS Trust.

For more information, contact Rebecca Bentley, Macmillan Brain Metastases Clinical Nurse Specialist.

Eight members of the East Midlands brain metastases service team stand in front of a whiteboard smiling.

East Midlands Teenagers and Young Adults Survivorship Service

The service implements survivorship principles at the end of treatment for teenagers and young adults living in Nottinghamshire.

Tailored follow-up care, including the Recovery Package, and signposting to local services and support helps to maximise life chances and deal with the long-term consequences of cancer on areas such as fertility and education.

The service also provides practical and emotional support to teenagers and young adults through the volunteer-led Macmillan One2One Support Project and the BOOST scheme which helps young people get back to work after a cancer diagnosis.

Partners: Macmillan and Nottingham University Hospitals NHS Trust.

For more information contact Laura Cutler, Macmillan Clinical Nurse Specialist for Long Term Survivors of Teenage and Young Adult Cancer.

A headshot of Laura Cutler with a cricket field in the background. She wears a Macmillan lanyard and smiles at the camera.

Long Term Follow-up of Survivors of Childhood Cancer

This is a service that focuses on providing high quality structured after cure follow-up for all childhood cancer survivors across Nottinghamshire. 

The service supports children and adults treated for childhood cancer and none malignant brain tumours, providing information on the long-term consequences of cancer treatment and survivorship principles.

Patients receive a detailed after cure care plan, surveillance needs and signposting to other local services for example psychological and wellbeing support. 

Partners: Macmillan and Nottingham University Hospitals NHS Trust

For more information please contact Nicky Webb, Macmillan Late Effects Clinical Nurse Specialist.



Macmillan Beyond Diagnosis Project

The Macmillan Beyond Diagnosis Service, in partnership with Self Help UK, provides emotional and practical support to people affected by cancer in Nottingham City, Mansfield, Ashfield, Newark and Sherwood, Rushcliffe, Broxtowe and Gedling.

Trained volunteers provide support for a couple of hours a week which may include a cup of tea and a chat, accompanying people to appointments or support with shopping.  The service is open to anyone affected by cancer, including carers, at any stage after their diagnosis. It particularly benefits those who have finished treatment and who may be suffering from the long-term effects of cancer, including loneliness. The service is coordinated by three Macmillan Professionals. 

The service also now includes a Deaf Community Development Officer for Nottinghamshire and Derbyshire with the aim of providing valuable insight into delivering volunteer and peer support initiatives to the deaf community, supported and designed by deaf people. The aim is to explore and implement new and innovative ways to increase cancer professionals’ understanding of the access needs of deaf people.


More information on the Self Help UK website.

Partners: Macmillan, and Self Help UK.

Kerry Brealey, Macmillan service team leader, stands smiling in a cricket ground.

Macmillan Cancer Information and Support Service at King’s Mill Hospital

The Macmillan Information and Support Service at King’s Mill Hospital provides high quality information and support in a relaxed, comfortable environment. The service offers complementary therapies, befriending, benefits advice, self-help, wig clinics, hair loss support sessions and active listening sessions.

The centre now offers access to The Hope Programme, a health and lifestyle coaching course to support people to live well following cancer treatment and Look Good Feel Better sessions.

Patients are also signposted and referred to other relevant local services and support groups.

The service is available to anyone affected by cancer including family, friends and carers, from the moment of diagnosis to beyond treatment.

Partners: Macmillan and Sherwood Forest Hospitals NHS Foundation Trust.

For more information email Jo Gregg, Macmillan Information and Support Manager or call 01623 622515 ext 6499. The service is open Monday to Friday, 9am – 3.30pm.

Jo Gregg, stands in front of shelves full of Macmillan booklets.

Macmillan CARE Programme (Cancer and Rehabilitation Exercise)

The Macmillan CARE programme provides support and supervised activity sessions for people affected by cancer. The safe and effective exercise sessions can increase energy levels, build confidence and improve strength and endurance. whichThis can help people to cope with the side-effects of treatment and reduce the chances of re-occurrence.

The CARE programme helps to motivate participants to incorporate and benefit from physical activity, whilst also providing a social and fun environment.

For more information on this project visit the website or contact Emma Trent, Project Manager.

Partners: Macmillan and Notts County FC Football in the Community.

Emma Trent smiles at the camera

Macmillan GPs in Nottinghamshire

There are seven Macmillan GPs working across Nottinghamshire as cancer champions, sharing best practice with their colleagues to make the best use of services and support patient needs.

They work closely with commissioners to improve cancer care pathways and are helping to develop and promote the Recovery Package, a key national NHS initiative to provide better support for people living with and beyond cancer.

The Macmillan GPs also fill an important role as ambassadors for Nottinghamshire on national and regional cancer forums such as the Cancer Alliance.


Macmillan Information and Support Service in Nottingham

The Nottingham Macmillan Cancer Information and Support Service, based at both the City and Queen’s Medical Centre (QMC) Campus, is a confidential drop-in service for anyone affected by cancer. This includes patients, relatives, friends and healthcare professionals. It provides cancer information, benefits advice and emotional and practical support.

The service can also signpost to other relevant local services and support groups, and is available to anyone living with cancer, from the moment of diagnosis to beyond treatment.

An Alternative Hair Loss Clinic is held within the centre every Friday between 2pm and 4pm in partnership with TrendCo. The service is free and no appointment is required.

Partners: Macmillan and Nottingham University Hospitals NHS Trust.

For more information contact Alison Hall, Macmillan Cancer Information Specialist or Rebecca Lea, Macmillan Cancer Information Officer. You can also call the City Hospital centre on 0115 8402650 or the centre at QMC on 0115 9709933.

Rebecca Lea stand smiling in front of a long shelves filled with Macmillan information booklets.

The Macmillan Nottingham Cancer Support Service

The Macmillan Nottingham Cancer Support Service offers face to face and telephone support and advice to people affected by cancer living in Nottingham City. The team of nurses and assistant practitioners work alongside the Community Macmillan Specialist Team to deliver support which is tailored to their individual need. The aim is to help people affected by cancer with their long-term health and wellbeing needs to live well with and beyond cancer.

For more information about the service contact Abi Powell.

Partners: Macmillan, and Nottingham CityCare.

Abi Powell smiles at the camera

The Macmillan Psycho-Oncology Service

Following the success of the Macmillan- funded pilot project providing psychological support to head and neck, lung, haematology and HPB cancers (2015-2017), a further Macmillan pilot project, (for gynaecology, urology, skin, upper-GI and brain cancer), was secured and set up in October 2017. As a result, the wider Clinical Psychology Cancer Service at King’s Mill Hospital has expanded to provide psychological support to all cancer patients within Mansfield, Ashfield, Sherwood and Newark localities.

The team have also set up a website with easy access to self-help material which has received over 3000 hits since its launch in 2015.

The team continue to offer Level 2 training to healthcare professionals. This involves helping staff to recognise anxiety and depression in cancer patients, and to deliver basic cognitive behavioural interventions to improve patients’ emotional wellbeing and quality of life. The team have also published academic papers, addressing gaps within the cancer literature.

Partners: Macmillan Sherwood Forest Hospitals NHS Foundation Trust and Nottinghamshire Healthcare NHS Foundation Trust.

For more information about the service or to access self help material visit the website and contact Sanchia Biswas or Naomie Pye.


Macmillan Specialist Palliative Care Pharmacist

The Macmillan Specialist Palliative Care Pharmacist provides medicine-related expertise and advice to cancer patients, carers and health professionals at Nottingham University Hospitals NHS Trust.

They also:

  • provide support, information and counselling to palliative care patients and carers to help them make informed decisions about their medication.
  • deliver staff training around palliative care medication issues
  • develop policies and procedures to ensure a high standard of pharmaceutical care to patients at the end of life.

Partners: Macmillan, Haywood House Hospice and Nottingham University Hospitals NHS Trust.

For more information contact Rebecca Harrison, Macmillan Specialist Palliative Care Pharmacist .


Macmillan Urology Oncology CNS Service

The Macmillan Urology Oncology CNS Service supports patients with prostate and bladder cancer who are having treatment under the care of an oncologist in Nottingham. The service helps patients with a range of complex needs from psychological issues to side effects of treatment such as fatigue, incontinence or erectile dysfunction. It is run by two Macmillan Urology Oncology clinical nurse specialists and, as part of their service, patients and carers can contact them for telephone support and advice during working hours. This means that patients have access to specialist nursing support from the beginning of their oncology journey to beyond treatment.

Partners: Macmillan and Nottingham University Hospitals NHS Trust.

For more information about the service please contact Hanna Purves or Angela Waldron.


The Nottingham Community Macmillan Specialist Cancer and Palliative Care Service

The service aims to maintain and enhance quality of life for adults with cancer, and their carers, in Nottingham City, at any stage of the cancer pathway. The small team of specialist nurses provide holistic needs assessments in people’s homes or community settings, in addition to telephone support.

This specialist service supports people affected by cancer who present a higher level of need, such as experiencing pain or symptom problems. It works alongside the Macmillan Nottingham Cancer Support Service.

Partners: Macmillan and Nottingham CityCare Partnership.

For more information about the service contact Ruth Feakes or Rebecca Weller.


Nottingham Late Effects Service

This bespoke service aims to support people suffering with long-term effects from radiotherapy.

The clinic looks at the patient holistically (using a recognised scoring tool), offering practical advice and signposting for a range of physical and psychological effects. It offers a wide range of support and guidance regarding late effects such as bowel and bladder problems, infertility, osteoporosis, sexual dysfunction, pain management and psychological issues to name a few.

Patients can book themselves directly into the clinic by phoning the Information and Support telephone number 0115 9627976.

The clinic also takes referrals from GPs, hospital doctors, cancer nurse specialists and other allied health professionals within the hospital and community. After the initial consultation (during which a care plan will be discussed), patients are offered a follow-up appointment two-three months later. GPs are informed about the clinic date and outcome in order to maintain continuity of care.

Partners: Macmillan, and Nottingham University Hospitals NHS Trust.

Please contact Emma Hallam or Liz Stones for more information.

You can also use the Information and Support telephone number 0115 9627976 or email lateeffects@nuh.nhs.uk


Nutrition Innovation in Cancer Project

The Nutrition Innovation in Cancer Project aims to improve information and training for patients, carers and health professionals to inform better nutritional choices.

Research has found that a high number of cancer patients are malnourished, with hospital stays on average three days longer than their nourished counterpart. Also, 30% of cancer diagnoses could be associated with avoidable nutrition-related lifestyle factors such as obesity, alcohol and nutritional deficiencies.

Partners: Macmillan and Nottingham University Hospitals NHS Trust.

For more information contact Laura Miller.

Laura Miller smiles wearing a Macmillan lanyard next to another member of the Nutrition Innovation team.