Diagnosing lymphoedema

You’ll be asked about any other signs or symptoms you’ve had and the swollen limb or area will be examined.

Not all swelling is caused by lymphoedema and sometimes tests are needed to rule out other possible causes, such as a blood clot. Some people may need to have scans to find out if the lymphoedema is caused by a cancer spreading to, or pressing on, the lymph nodes.

Lymphoedema specialist Back to top

Once lymphoedema is diagnosed you’ll usually be referred to a specialist lymphoedema nurse, breast care nurse, doctor, or a physiotherapist for a full assessment. Different health professionals and massage therapists are involved in treating lymphoedema. In this section, the term lymphoedema specialist refers to any one of these health professionals.

Specialist lymphoedema centres Back to top

In some areas of the UK there are specialist lymphoedema centres where treatment and advice are given. Your doctor or nurse should be able to tell you if there’s one in your area, or you can contact the British Lymphology Society|, which produces a directory of centres.

If you don’t live close to a centre, there are other organisations| that can offer advice and support.

Assessment Back to top

This is carried out by a lymphoedema specialist who will assess whether your lymphoedema is mild, moderate or severe. This is done by measuring the size of the limb and checking any skin changes|. The specialist will also assess whether your movement and ability to do everyday things is affected. Occasionally, other special tests may be used when it’s difficult to diagnose lymphoedema.