Prevention & Early Diagnosis Programme
The Prevention & Early Diagnosis Programme supports the Macmillan Outcome, 'I was diagnosed early'. This outcome was identified in Macmillan's Cancer in the UK 2014 State of the Nation report, as one of the nine biggest issues that matter most to cancer patients in the UK today.
Our work pioneers initiatives to ensure that all people affected by cancer can recognise this outcome by 2030, and includes projects to help promote awareness of the benefits of earlier recognition, as well as improve referral and early diagnosis of cancer. We're also developing tools to help GPs and primary care professionals.
Significant Event Analysis (SEA) ToolkitBack to top
The cancer SEA toolkit and its resources have been developed by Macmillan, RCGP and NHS England to support GPs, practice staff and commissioners in conducting high quality cancer SEAs with the aim of improving patient outcomes in the early diagnosis of cancer.
Cancer SEAs prompt a GP to reflect on their diagnosis, and identify any potential improvements including issues with practice systems, hospital systems or cancer referral pathways. They can also encourage improvements in important areas such as proactive safety-netting.
Find out more and gain access to training resources and guidance, fictional examples of cancer SEAs and background information.
Top tips for GPs: Implementing NG12Back to top
This guide aims to support GPs who are involved in implementing the updated NICE NG12 guidelines for suspected cancer: recognition and referral. The guidelines were released in June 2015 and cover England and Wales. This guide includes top tips on how to develop local processes to implement the guidelines using relevant examples, the learning from which could apply to all four nations. It also sets out how Macmillan can support you throughout this process.
Download the guidelines [PDF, 3.2MB]
Referral guidance for suspected cancer is available for England and Wales in the form of Macmillan’s Rapid Referral Guidelines for desktop [PDF] (based on the 2015 update of the NICE suspected cancer recognition and referral guidance).
The interactive PDFs act as referral toolkits to provide support, guidance and practical solutions for healthcare professionals involved in the improvement of cancer care. The guidelines are organised by tumour type, to help support GPs in referring patients for cancer, as well as identifying the appropriate referral pathway to use.
The desktop version of Macmillan’s Rapid Referral Guidelines [PDF] also provides the option for users to add contact information for local services, so that patients can be signposted to appropriate health services in their area. Additionally, these guidelines are now available for:
These allow GPs to access the guidance whilst away from their practice. In Scotland, a mobile app is currently in development for the Scottish Referral Guidelines, with hard copies already available.
Macmillan’s Rapid Referral Guidelines are based on NICE guidance whose remit covers England and Wales. This toolkit supports all of the recommendations in the NICE guideline on suspected cancer: recognition and referral apart from those relating to specific childhood cancers. For more information on this endorsement, please see the implementation section of the NICE website. GPs located in Scotland can access the Scottish Referral Guidelines for suspected cancer online.
Cancer decision support (CDS) toolsBack to top
Throughout 2013 we worked collaboratively with BMJ Informatica to develop and pilot an electronic cancer decision support (CDS) tool. Part funded by the Department of Health, the project aimed to help support GPs in their clinical decision making when referring patients with suspected cancer.
Other CDS resources:
For more information, including training resources, see our CDS page.
The GP referral styles project looked at the different referral styles of GPs, then identified tools and interventions that support their style of referral. The project was piloted with GPs in Bedfordshire and Luton. We have written up the findings from the evaluation and are looking into ways in which we can share and utilise the learning to support GPs in the recognition and referral of suspected cancer. If you would like a copy of the project findings, please email us.
The ACE programme is an NHS England led early diagnosis of cancer initiative, supported by Macmillan and Cancer Research UK. The programme began in June 2014 and ‘Wave 1’ of the programme will run until late 2016.‘Wave 2’is expected to run until the end of 2017.
ACE seeks to develop the knowledge base on early diagnosis in order to identify and evaluate good practice, which can reduce system delays and improve early diagnosis of cancer. ACE supports the NHS outcome “preventing people from dying prematurely”.
The ACE programme:
- Accelerates progress
- Coordinates implementation
- Consistently evaluates best practice and innovative approaches to early diagnosis of cancer.
For further information please see our pages about the ACE programme, ACE programme structure, and the ACE clusters. Alternatively email ACE@macmillan.org.uk.