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Macmillan works closely with a coalition of five other major charities with considerable experience of supporting and understanding the needs of people approaching the end of their lives and their families and carers.
We have been working together to highlight the lack of choice and the variable quality of care available to dying people and their families and carers. In July 2016 the Government published their response to the Independent Review of Choice in End of Life Care [PDF], which sets out a new ‘National Commitment’ based on everyone at the end of life receiving high quality care tailored to their needs and wishes. However, there is still a long way to go to translate the recommendations into tangibly better care for patients and we will be continuing to work closely with other organisations to ensure this vision is implemented.
Our new report, ‘The Final Injustice’, highlights the startling variation in the delivery of end of life care in England and emphasises the urgent need for action on the Government’s commitment.
In particular, we are calling for:
- The Government to clearly set out how it intends to honour and resource its ‘National Commitment’ to end variation in end of life care.
- Local health leaders to plan for, and provide, sufficient resources to deliver high quality and personalised end of life to all patients.
- The Department of Health and National Institute of Health Research to commission research to understand the disparity of experiences in end of life care for the most deprived patients.