At times I really needed to talk to someone and finding the right person was hard, I wanted to talk to someone who understood where I was coming from and who wouldn’t have any agenda.
It was hard for my children to deal with – you don't know how much it affects your family as well. My daughter in particular found it hard to talk about and cope with. She began having panic attacks. She is fine now although it's still hard for her to talk about it.
My relationship with my husband suffered – it puts so much strain on you both. It’s almost worse for your partner because at least the person with the illness is getting treated.
When my friend's father was diagnosed with multiple myeloma he was frightened. He spoke to me about how it would affect him and if he would still be able to play golf. He hadn't asked anyone else. I felt so pleased to be able tell him that of course he would be able to play golf, and go on holidays and quote actual real life tales of this happening. I was thrilled to be able reduce his fears and tell him what it was really like, My friend told me it completely changed his outlook and made the whole thing less frightening for him.
Now it feels like the whole illness was a gift – it made me see how much people care for you and love you. People kept telling me I was so positive but I had to be.