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Macmillan and Cancerbackup merged in 2008. Together we provide free, high quality information for people affected by cancer through our publications, website and phone service. Find out more|.
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The first symptom of KS is usually skin lesions. Occasionally KS can also affect other parts of the body such as the lymph nodes, lungs, stomach or bowel. When this happens the symptoms will depend on the part of the body that’s affected. Some people may have general symptoms such as fever, weight loss and loss of energy.
These can vary in colour from pink to brown, brown-red or reddish purple. KS can appear as a raised or slightly raised bump (nodule) or a flat area on the skin.
The lesions can develop quickly. Although there may be a single area at first, it’s possible for more than one to appear. Often the lesions merge to form a larger tumour. Any part of the skin, including the inside of the mouth, can be affected.
If the lymph nodes are affected by KS, they may become swollen but generally cause few symptoms.
KS can cause damage to lymph vessels. These are part of our lymphatic system|, which helps us fight infection. When the lymph vessels are damaged, this can lead to a build-up of fluid in the arms or legs. This is called lymphoedema|.
Our section about lymphodema gives useful advice about managing and reducing it using gentle exercise| and massage.
KS in the lungs can cause breathlessness| and a cough.
KS may cause symptoms such as feeling sick (nausea) and being sick (vomiting)|.
Occasionally the lesions may bleed slowly, which over a period of time may cause anaemia (low numbers of red blood cells).
For answers, support or just a chat, call the Macmillan Support Line free (Monday to Friday, 9am-8pm)
If you have any questions about cancer, need support or just want someone to talk to, ask Macmillan.