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The findings from all eight pilot areas have informed a number of resources, including publications and an online service development toolkit, to help share our learning.
We have written several articles for Macmillan Voice, our magazine for Macmillan postholders:
The journal Familial Cancer also published a special edition about the programme in June 2007| (volume 6, no. 2).
Mick Mason, a service user involved in the programme, co-wrote the article 'Coping with FAP: The role of patients' associations'. The article is about FAP gene (you can find out more on the FAP gene website|) and features in Intestinal polyps and polyposis: From genetics to treatment and follow-up|.
The NHS National Genetics Education and Development Centre has designed an online toolkit| for developing genetics services in mainstream healthcare.
The Centre's website| contains a wealth of resources about genetics education, applying genetics in clinical practice, and workforce competencies for non-genetics healthcare staff.
A team at Nottingham University evaluated a number of genetics service development initiatives, including the cancer genetics programme, for the Department of Health. Several cancer genetics pilots were case study sites in the evaluation.
We have developed NHS commissioning guidance for cancer family history services, using the learning and outcomes of the cancer genetics programme. The guidance is part of the Department of Health's Cancer Commissioning Guidance 2009|. Please refer to section 3.2 (found in the Prevention section).
If you have any questions about Macmillan we would love to hear from you| .
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© Macmillan Cancer Support 2013
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