The Inclusion Department at Macmillan works at community, policy and government level to make change.
We promote equality, human rights, diversity and user support and involvement through a range of innovative projects, training, grants programmes and guidance to improve the delivery of cancer care and services.
The Inclusion Department
The Inclusion Department works across a range of projects, focusing on five main programmes:
1. Improving and measuring the impact of relational care on patient and staff experience outcomes
Macmillan understands that cancer does not only affect an individual as a ‘patient’ but the whole of a person’s life. Research is beginning to indicate that interpersonal interactions and communications may be what patients value the most, more strongly than the technical characteristics of clinical care. This is what shapes patient experience. This is also what matters to health professionals, reinforcing their sense of vocation and professional ethics.
2. Patients driving change, for themselves and others
We want to enable people living with cancer to get involved with:
Influencing and improving local and national health and social care services
Providing new forms of peer to peer support
Providing insight to identify innovations in the delivery of cancer care.
3. Variation and vulnerable groups
Despite improvements in cancer survival, care and experience, there are still inequalities. We want to better understand the service experiences of ‘easy to ignore’ communities. We are developing local and regional networks of people affected by cancer within these communities, and gathering information on their unmet needs. We are developing partnerships with organisations which can help us engage with these communities, and which can identify and influence research partners to help fill gaps in our knowledge.
The National Cancer Equality Initiative (NCEI)
The National Cancer Equality Initiative (NCEI) was established to bring together key stakeholders from the professions, voluntary sector, academia and equality groups to support, inform and champion efforts to improve cancer outcomes by reducing inequality. The NCEI is chaired by Sean Duffy, National Clinical Director for Cancer, NHS England, and the secretariat is provided by Macmillan Cancer Support.
The Pharmaceutical Oncology Initiative (POI) is a group of pharmaceutical companies who are all members of the Association of the British Pharmaceutical Industry (ABPI). They work in collaboration with the DH, NHS and other key partners to improve the delivery of cancer services and access to medicines.
In order to better understand the evidence on the clinical effectiveness and tolerability of treating older people with cancer drugs, the NCEI and POI commissioned the Liverpool Reviews and Implementation Group to undertake systematic reviews for Breast and Kidney cancer. Further reviews are expected for: Bowel cancer; Chronic Myeloid Leukaemia; Non-Hodgkin Lymphoma; and Lung cancer.
The final version of the report can be found here, if you have any questions surrounding this please contact Andrew Jazaerli on firstname.lastname@example.org or 020 7091 2045.
4. Improving ‘touch points’ in the care journey
We are identifying the impact of poor patient experience at key points in the care journey. We have captured this through user insight, and the the implementation of a developed evaluation framework to capture data based on local usage.
5. Age Friendly Care
Care and support for older people needs to be transformed if we are to live full and dignified lives, especially when we are at our most vulnerable. It is vital that steps are taken to ensure that older people get the right treatment, at the right level. Practical support must also be provided to enable them to take up and complete the treatment.
Our current inclusion projects and activities
Use your own cancer experience to help Macmillan and other healthcare organisations change the future of cancer care.
Self-help & support groups
Macmillan supports over 900 independent cancer support groups, helping you to talk to people who understand what you're going through.
We are currently running a number of inclusion projects to help tackle cancer inequalities.
Also, read our new report - The People Behind Cancer Care - Patient and staff stories and visit our Patient's stories section.