There were moments I felt very alone. Waking up in the night and finding blood in your urine is a very lonely place to be.
I had my nurse Gill, who I could call and speak to. I also had Val down at the local chemist who had received training from Macmillan. I had my doctor, and of course my partner Prue. But it still doesn’t change the fact that you can feel alone, no matter how much reassurance you get.
The fact you can’t do anything for yourself makes it a very difficult place to be. Even things you take for granted, like having a shower or getting dressed. You can feel quite lonely then when you’re not able to do your own shoelaces up or put your own underpants on. You just feel desolate.
I have used the Macmillan Online Community and I have called the support line on a couple of occasions to talk things through with them. The Online Community has all the different cancers and chat rooms where you can talk to other people with the same cancer as you. You can get a different perspective and encouragement. Hopefully, you can offer support and encouragement to those a little less far along the road than you.
All of it has helped, because you know you’re not on your own. You know there are other people going through the same things that you’re going through, the same emotional issues. It’s somewhere you can go for support. There’s always somebody willing to listen.