Follow-up for pancreatic cancer

During your treatment, you will usually have regular talks with someone from your cancer team. This may be your specialist doctor or nurse, or another health professional. They can talk to you about what to expect during and after treatment and ask about any concerns and needs you have.

You may have a holistic needs assessment to assess your care needs. Then a care plan can be made up based on this. It should give information about the support you’re getting and other services that may be useful.

You should have a copy of the care plan to use at follow-up appointments or when you see your GP or other doctors about anything not related to the cancer. You can update your care plan whenever you need to.

Some hospitals produce a treatment summary which describes the treatment you’ve had, what you should expect and details of the follow-up care or tests you’ll have. You keep a copy and the hospital should send another to your GP.

These assessments, care plans and treatment summaries aren’t used everywhere, but more hospitals are starting to use them.

After treatment is finished, or if you are having supportive care, you will still have regular follow-up appointments. You may keep going to the hospital for these appointments, or you may go to your GP. This is sometimes called a shared care agreement.

You may continue to have regular scans and blood tests including CA 19-9 tests. If you have any problems, or notice any new symptoms between appointments, let your doctor know as soon as possible.

Many people find they get very anxious before appointments. This is natural and it may help to get support from family, friends or one of the organisations listed on our database during this time.

Back to Care after treatment

Who can help?

Many people are available to help you and your family.