Follow-up for myeloma

You will usually have regular appointments at the outpatient clinic at the hospital during your treatment and during remission. Or you may have follow-up appointments with your GP. This is sometimes called a shared care agreement.

If you have any problems, or notice any new symptoms between appointments, let your doctor know as soon as possible.

Many people find they get very anxious before appointments. This is natural and it may help to get support from family, friends or one of the organisations in our database during this time.

Throughout your treatment, you will usually have regular talks with someone from your cancer team. This may be your specialist doctor or nurse, or another health professional. They should talk to you about what to expect during and after treatment and ask about any concerns and needs you have.

In some hospitals, this is called a holistic needs assessment. Your cancer team may write a care plan based on this. This should give information about the support you are getting and other services that may be useful.

You should have a copy of the care plan. You can use it at follow-up appointments or when you see your GP or other doctor about anything not related to the myeloma. You can update your care plan whenever you need to.

Some hospitals produce a treatment summary that describes:

  • the treatment you’ve had
  • what you should expect
  • details of the follow-up or tests you’ll have.

You keep a copy and the hospital should send a copy to your GP.

These assessments, care plans and treatment summaries aren’t used everywhere, but more hospitals are starting to use them.

Back to Care after treatment

Your care

After your treatment ends you will receive follow-up care from your healthcare team and you may have tests and scans to check your health.

Who can help?

Different people and organisations are available to help after treatment for myeloma.

Be aware of symptoms

Ask your doctor or nurse if there are any symptoms you should look out for after treatment finishes.