Follow up for non-Hodgkin lymphoma

At the end of your treatment, you will have a meeting with your lymphoma doctor or specialist nurse. They will explain:

  • how often you will have follow-up appointments
  • possible signs of the lymphoma returning that you should be aware of
  • any possible late effects of treatment.

Your cancer doctor or nurse may give you and your GP a letter with this information and a list of the treatments you have had. This is called a treatment summary.

To begin with, your follow-up appointments may be every three months or so. After the first two years, you may have fewer appointments or you may be discharged. This depends on the type of lymphoma you had. Your cancer doctor or specialist nurse will explain what to expect.

At your follow-up appointments

Your doctor may examine you, check your weight and take blood tests. You won’t usually have scans, unless you develop symptoms that need to be checked. Your doctor will want to know how you are feeling. They will also want to check that you are recovering from any side effects. Appointments are a good time for you to talk to your doctor or nurse about any concerns you have.

Many people find they get anxious for a while before a check-up. This is natural. It can help to get support from family or friends. You can also contact the Macmillan Support Line on 0808 808 00 00.

We have more information about care after cancer treatment.

Back to After treatment for non-Hodgkin lymphoma

Long-term and late effects

Some people have treatment related side effects that continue or develop months or years after it ends. These are called late effects.