Having information about the type of cancer you have and its treatment can often make coping with your situation easier. But getting information about a rare cancer can be difficult. You may want to know as much as possible about the cancer and its treatments to help you make the best decisions. You may also need information and support to manage any symptoms you have and cope with practical issues such as work and money.
The first people to talk to are your cancer team at the hospital. They know the details of your situation and can tell you about plans for treatment. They can help with emotional support and put you in touch with people who can help with practical issues like finances.
There is information about many types of rare cancers on this website. If you can’t find what you are looking for, you can also call our cancer support specialists free on 0808 808 00 00.