You may worry about what to say to people about your diagnosis. It can be difficult telling people what is happening, and you might be worried about how they will react.
It’s up to you how much you want to tell people and who you want to tell. You might decide to only tell your family and some close friends who you trust .
Think about how you let people know what is going on. You could talk face to face or on the phone. Or you may find it easier to send an email, letter or text. Social media can also be a great way of keeping in touch, but remember what you say will be seen by others, unless you send a private message.
Here are some tips:
- Think about how much you want to share. For example, you could say you are waiting for tests and results, but that you are trying to get on with life as normal.
- Introduce the subject gently. You could start with something like: ‘This is going to be difficult, but I need to tell you something’.
- Try to give small amounts of information. The person you are telling may not be able to take everything in at one time.
School or university
If you are at school or university, it is a good idea for you or someone close to you (like a parent or an adult family member) to talk to staff about your situation. If you are worried about your health or not feeling well, it can be hard to concentrate or do well in coursework or exams. If your teachers know what is happening, they may be able to help.
If you are working, you may feel unsure about what to tell your employer. It can help to be honest at this stage, especially if you need to take time off for hospital appointments.
Whether you are in education or employment, you can always speak to your specialist nurse or social worker if you need help to explain your situation.