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AMEND (Association for Multiple Endocrine Neoplasia Disorders)

AMEND (Association for Multiple Endocrine Neoplasia Disorders)

Practical help and support groups

A UK-registered charity since 2003, AMEND is a patient group providing information and support services to families affected by multiple endocrine neoplasia disorders and associated endocrine tumours and syndromes, including adrenocortical cancer (ACC) and SDH disorders. Run by patients for patients with the support of an expert medical advisory team, AMEND provides free email and telephone support, patient information events, provides a psychological counselling helpline, runs a Research Registry, awards research grants and produces patient information for adults and children. Further information on our free resources and free membership can be found on our HONCode certified website.

Cancer type(s):

Endocrine tumours

AMEND provides information resources and support services to families affected by multiple endocrine neoplasia and funds research into the conditions.

We offer:

  • Befriending
  • Bereavement support
  • Cancer information materials
  • Counselling
  • Home visiting
  • Hospital visiting
  • Information
  • Support from Health Professionals
  • Telephone helpline

Catchment area:

National. Families affected by multiple endocrine neoplasia (MEN) SDH disorders and adrenocortical cancer (ACC).

  • Opening times:

    Not applicable

Interested in joining us?

Just come along to our next meeting, or get in touch with us on the details below.

Find out more:

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