18 November 2014
For the first time Macmillan has published patients’ comments as part of a Wales patient cancer experience survey.
Macmillan in Wales has given cancer patients in Wales the chance to shape treatment and care after their comments were analysed and detailed by the University of Southampton, which has now produced a detailed academic report.
An executive summary has also been produced by the University of Southampton, download it in English or in Welsh.
Macmillan in Wales has produced a summary of the Southampton report and this also includes our key policy calls in Wales for government and health boards. Read the Macmillan summary in English or in Welsh.
You can read the Macmillan press release here.
The report reveals high levels of satisfaction around surgery, chemotherapy and radiotherapy and praise for specialist nurses. But there were concerns around initial identification of symptoms, staff shortages and the provision of too little information and support.
The data from the Wales Cancer Patient Experience Survey was published in January 2014, and was the first time a survey of cancer patients had been conducted in Wales, yielding important information about how patients view their treatment.
The survey captured the views of 7,352 patients and achieved a response rate of 69 per cent. Of those taking part in the survey 4,672 respondents provided comments. Of these 3,818 comments were positive, while 2,313 were negative.
Macmillan General Manager Susan Morris said: “This is the first detailed analysis of comments made by cancer patients about their treatment and care, and captures the voice of the patient.
“It provides us with a powerful insight and richer understanding of the patient experience of cancer care in Wales.”
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