6 July 2016
Today NHS England released breakdowns of Trust and CCG level data for the Cancer Patient Experience Survey (CPES) in England (NHS England press release
). Macmillan Cancer Support estimates that over 100,000 cancer patients in England are failing to receive a care plan of support after diagnosis1
. Dr Fran Woodard, Executive Director of Policy and Impact at Macmillan Cancer Support says:
“While on the surface cancer patients are having a good overall experience of care, a closer look shows there are still concerns. It is deeply worrying that more than half (54%) of cancer patients are failing to receive a care plan2 which sets out their treatment and could include information on potential side effects and where they can get vital support. It is also a concern that estimates suggest over 100,000 people may not be being told about the long-term side effects of their cancer treatment, and therefore may be unaware of debilitating side effects such as heart conditions or incontinence, and have no guidance on where to get support3.
“The results suggest that there is still a one-size-fits-all approach to cancer care and a lack of personalised support, with a third of in-patients (33%) saying some staff didn’t ask them what they wanted to be called4. It is vital that cancer patients have a good experience of care from the moment they experience symptoms, through treatment and for as long as they need afterwards. Everyone with cancer has different needs. Some may require support with long-term side effects, others with mental health issues or money worries. Everyone should receive personalised support through a care plan that is regularly updated as their needs change, so they are fully informed and can access the essential services they need.”
For further information, please contact:
Catherine Jones, Senior Media & PR Officer, Macmillan Cancer Support
0207 091 2453 (out of hours 07801 307068)
Notes to Editors:
- Macmillan estimate based on the 54% of respondents said they had not been given a care plan (Quality Health, National Cancer Patient Experience Survey 2015, http://www.ncpes.co.uk/index.php/reports/national-reports/2488-cpes-2015-national-results/file) applied to the 280,000 people had a first treatment for cancer in 2015 (NHS England .Cancer waiting times. https://www.england.nhs.uk/statistics/statistical-work-areas/cancer-waiting-times/) to give a minimum number saying they were not given a care plan.
- Quality Health, National Cancer Patient Experience Survey 2015, http://www.ncpes.co.uk/index.php/reports/national-reports/2488-cpes-2015-national-results/file It should be noted that 20% of respondents did not know, did not understand what a care plan was or could not remember getting a care plan.
- Quality Health, National Cancer Patient Experience Survey 2015, http://www.ncpes.co.uk/index.php/reports/national-reports/2488-cpes-2015-national-results/file .
- Macmillan estimate based on the 42% of respondents who replied when asked ‘Before you started your treatment(s), were you also told about any side effects of the treatment that could affect you in the future rather than straight away?’ ‘Yes, to some extent’ or ‘No, future side effects were not explained’ (Quality Health, National Cancer Patient Experience Survey 2015, http://www.ncpes.co.uk/index.php/reports/national-reports/2488-cpes-2015-national-results/file) applied to the 280,000 people had a first treatment for cancer in 2015 (NHS England .Cancer waiting times. https://www.england.nhs.uk/statistics/statistical-work-areas/cancer-waiting-times/) to give a minimum number not being definitely told about long term side effects.
- Quality Health, National Cancer Patient Experience Survey 2015, http://www.ncpes.co.uk/index.php/reports/national-reports/2488-cpes-2015-national-results/file . It should be noted that the question refers to a subset of people who had an operation or overnight stay (i.e. in-patients). The 33% includes those who were asked ‘While you were in hospital did the doctors and nurses ask you what name you prefer to be called by?’ said ‘none of them did’ or ‘only some of them did’.
About Macmillan Cancer Support
When you have cancer, you don’t just worry about what will happen to your body, you worry about what will happen to your life. Whether it’s concerns about who you can talk to, planning for the extra costs or what to do about work, at Macmillan we understand how a cancer diagnosis can take over everything.
That’s why we’re here. We provide support that helps people take back control of their lives. But right now, we can’t reach everyone who needs us. We need your help to make sure that people affected by cancer get the support they need to face the toughest fight of their life. No one should face cancer alone, and with your support no one will.
To get involved, call 0300 1000 200 today. And please remember, we’re here for you too. If you’d like support, information or just to chat, call us free on 0808 808 00 00 (Monday to Friday, 9am–8pm) or visit macmillan.org.uk