The majority of people (64%) want to die at home, however less than a third (30%) are able to do so. Each year in England, an estimated 48,000 people experience poor care in the final three months of their lives. And more than 12,500 cancer patients (10% of those who die in England each year) spend the last two days of their lives without adequate pain relief. This must be urgently addressed.
Consensus has grown around the urgent need for Government action to address the lack of choice at end of life. It is also widely accepted that if more people are treated in a community setting then savings can be made in the acute sector.
In July 2016 the Government published their response to the Independent Review of Choice in End of Life Care [PDF], which sets out a new ‘National Commitment’ based on everyone at the end of life receiving high quality care tailored to their needs and wishes.
However, over a year since this commitment was made there is still a long way to go to translate the Government’s recommendations into tangibly better care for patients. Our new report, ‘The Final Injustice’, highlights the startling variation in the delivery of end of life care in England and emphasises the urgent need for action on the Government’s commitment.
In particular, we are calling for:
- The Government to clearly set out how it intends to honour and resource its ‘National Commitment’ to end variation in end of life care.
- Local health leaders to plan for, and provide, sufficient resources to deliver high quality and personalised end of life to all patients.
- The Department of Health and National Institute of Health Research to commission research to understand the disparity of experiences in end of life care for the most deprived patients.
For more information:
- Read our latest report 'The Final Injustice'
- Read our latest Parliamentary briefing
- Read our report ‘On the brink – The future of end of life care’
- Get involved with the campaign
- Get in touch with Lucy Simpson, Public Affairs Officer