Waheed on symptoms

A woman called Waheed is seated with her two daughters. They are talking and playing a game of chess.
A woman called Waheed is seated with her two daughters. They are talking and playing a game of chess.

Waheed lived a normal, busy life, working hard and looking after her three children with husband Anthony. 

It wasn't until she began to get some of the more advanced symptoms of Ewing's sarcoma, that she even imagined anything might be wrong.

Waheed's story

Before becoming ill, my husband and I both worked very, very long hours, and the children were at school. We’d spend, you know, a long day at work, come home, do the bedtime routines with the girls, and then the day was over. It was almost like a treadmill. We were both extremely busy and in extremely stressful jobs.

I first noticed that something wasn’t quite right when I started to get quite an annoying pain in my lower back. I thought that it was because I’d strained my back lifting the girls or something.

When you’re a mother, you put your own health to one side to just keep things going for your children, to keep their routines going. It was never important enough for me to do anything about. I just thought it was a symptom of stress from work.

I started to take painkillers to try and ease the pain. That went on for three months, and over those three months, my back pain got progressively worse.

It was my youngest daughter, Sienna’s, birthday and we were going into London to see a theatre show. And I remember phoning my husband and saying, 'I think we’re going to need to get a taxi because I’m finding it really hard to walk', so we discussed it and we said we would go to the doctor's the next day so we could get through my daughter’s birthday.


Image of Waheed standing.

Watch: all about Waheed's experiences

Watch: all about Waheed's experiences