Waheed on diagnosis

Anthony and Waheed standing. Anthony has his arm around Waheed.
Anthony and Waheed standing. Anthony has his arm around Waheed.

After experiencing ongoing back pain and worrying changes in her mobility and bodily functions, Waheed was finally diagnosed with Ewing’s sarcoma, a rare form of bone cancer. 

It came as a complete shock to both her and her husband Anthony, having initially thought her symptoms were a result of stress.

Waheed's story

When I visited the doctor, he told me that he didn’t want me to go home and, in fact, my symptoms could be something quite serious. He asked if I would stay there until he could call an ambulance. My back pain had gotten so bad that I couldn’t feel my legs and I couldn’t walk properly. I was also starting to lose control of my bowels and bladder.

The doctor called an ambulance and I was taken straight to hospital where they did a variety of tests and said that I urgently needed an MRI scan. They sent me to a hospital that had a 24-hour MRI department and they took me there in an ambulance. I remember being in the hospital bed with my husband, Anthony, talking about how it’s probably nothing, and then the doctor came in and said to both of us, 'I'm really sorry but we found a tumour on your spine.' They explained that because it was affecting my movements, they had to operate immediately.

I had a biopsy as part of the operation and was diagnosed with Ewing’s sarcoma, which is an extremely rare and highly aggressive form of bone cancer. I was absolutely terrified, and so was my husband- having lost both his mother and his father to cancer in the last five years. It was a horrible moment. I didn’t know what was going to happen. I didn’t know much about cancer other than it’s a killer disease. I thought I was going to die. You see it happen to other people and I never thought it would happen to me.


Image of Waheed standing.

Watch: all about Waheed's experiences

Watch: all about Waheed's experiences