Coping with bowel changes

Knowing how to cope with the day-to-day issues caused by bowel changes can help you to feel more confident and in control. Planning ahead and making some lifestyle changes can mean problems become easier to manage. Try to:

  • Protect your skin by keeping it clean and dry. Use baby wipes, absorbent pads and barrier creams.
  • Plan ahead when going out. Find out where the toilets are and take a bag of clothes and other supplies with you.
  • Wear products that help with leakage or soiling. This may make you feel more confident, and help if you have an accident.

Keeping to a healthy diet and being physically active can help you maintain a healthy weight, which reduces stress on the pelvic floor muscles. Stress can sometimes make symptoms worse but finding ways to manage stress can help.

It may be embarrassing to talk about bowel problems, but many people find talking to specialist nurses, continence advisors or joining a support group can help.

Coping with bowel changes

If you are having bowel problems, you may worry about going out or getting involved in social occasions. But there are lots of practical things you can do and lifestyle changes you can make to help you feel more confident and in control.


Protect your skin

If you have problems with leaking (incontinence) from your bowel, it can make the skin in that area sore.

You can protect your skin by keeping it clean and dry. There are many products available. Your continence adviser can give you more information.

Below are some suggestions to help keep your skin clean and dry.

  • Unperfumed baby wipes are more gentle on your skin than toilet paper.
  • Absorbent pads and a non-oil barrier cream can help protect your skin.
  • Cotton underwear allows your skin to breathe more than other materials.


Going out

If you have problems with bowel control, you may feel worried about going out, especially to somewhere new. Planning ahead so that you are prepared can help you feel more confident.

Access to toilets

If you are going somewhere you’re not familiar with, it’s a good idea to find out where the toilets are in advance. Many towns and counties have lists or maps of the public toilets in their area. These are often on local authority websites. There are too many of these websites to list here, but you’ll be able to find them on the internet. Try typing “public toilets” and the name of the place you’re visiting into a search engine.

Carrying a Just Can’t Wait card may help you access a toilet more quickly when you’re out. The card states that the cardholder has a medical condition that means they need urgent access to a toilet. It can be used in places such as shops and pubs. You can get a Just Can’t Wait card from the Bladder and Bowel Foundation or Disability Rights UK.

You can also use disabled toilets. These often have more privacy. They have a wash basin and more space if you need to change. The National Key Scheme for Toilets offers access to about 9,000 locked public toilets across the UK. You can buy a key from Disability Rights UK. They can also send you details of where the toilets are.

Macmillan also has toilet card for people with late bowel effects. It gives you urgent access to a toilet when out in public. You can get one by phoning our Macmillan Support Line on 0808 808 00 00 and speaking to a cancer support specialist. Or, you can order it on our website at be.macmillan.org.uk

Take a bag with supplies

Pack a bag of the things you may need when you go out. This will help you feel more confident. You may want to include:

  • wet wipes or baby wipes
  • a non-oil barrier cream
  • pads and pants
  • a change of clothes
  • a sealable bag
  • anti-diarrhoea tablets (if you have problems with diarrhoea)
  • your Just Can’t Wait or Macmillan toilet card.


Specialist products for leakage or soiling

If you have problems with leakage or soiling (incontinence), there are different products you can wear. These help you feel more confident and protect your clothes if you have any leakage. A continence adviser can help you choose products that suit your needs.

You can buy pads for mild to moderate incontinence in most supermarkets and pharmacies and online. If these aren’t absorbent enough, you can get bigger pads from your continence adviser. They can also explain what’s available to you on the NHS. This can vary from region to region. The Bladder and Bowel Foundation offers advice and support via its helpline and website.

There are different types of pad you can wear during the day in case of accidents. Pads and pants with charcoal linings help reduce smell from leakage or wind. Stoma bags with filters also help reduce smell. There are also various types of pad you can use to cover your bed at night.

Anal plugs are made from soft foam and stop bowel leakage for up to 12 hours. There’s a cord attached to the plug, which allows you to remove it when you’re ready. Some people find anal plugs uncomfortable to begin with, but most people get used to them after using them a few times. Your continence adviser can tell you more about anal plugs.


Keep to a healthy weight

Being overweight puts pressure on your pelvic floor muscles. It's important to keep to a healthy weight if you have stress incontinence or problems with bowel control. Your GP can advise you about what the right weight is for your height.


Keep physically active

Keeping active will help you manage your weight and avoid getting constipated. This is important to help look after your pelvic floor muscles. Exercise also encourages you to go to the toilet more regularly. It helps you feel better and can reduce stress.

If you have a stoma, there is no restriction on the sports that you can play apart from contact sports. Ask your stoma nurse if you’re in doubt about what you can do.


Don't smoke

Smoking can make bowel symptoms worse. If you need advice on stopping smoking, talk to your GP.


Avoid constipation

This is important to help look after your pelvic floor muscles.

Our food guide list foods that help reduce constipation. You can also look at our diagram for the correct toilet sitting position.

Make sure you drink plenty of fluids and keep physically active.


Managing stress

The way you feel can affect your bowel. Anxiety and stressful situations can make your symptoms worse and may make accidents more likely.

Learning to relax may help improve some of your symptoms. Some continence clinics and support groups teach stress management. Your doctor or specialist nurse can tell you about relaxation classes in your area.

Relaxation CDs are available from bookshops and some health shops. You can also download relaxation podcasts from the internet.

Some people find that complementary therapies help them feel less stressed. For details of what’s available in your area, call our cancer support specialists on 0808 808 00 00.


Getting support

Bowel problems can be embarrassing and difficult to talk about. This can make you feel isolated. Health professionals can give you lots of support and advice if you let them know about any problems you’re having. They are used to dealing with these issues and can refer you to a counsellor or specialist if you need more help.

Support groups, online community sites and specialist organisations can also provide invaluable support. They’re a good way of meeting people who’ve been through similar difficulties. You can share experiences and solutions with each other. Partners, family members and close friends can also help you cope with feelings.

You can access the Macmillan online community at macmillan.org.uk/community

Back to Long-term and late effects

Changes in how your bowel works

Treatment for colon cancer may lead to changes in how your bowel works. These can usually be managed successfully over time.