What cancer patients want from the NHS
Matthew Cook - Teenage Cancer TrustBack to top
Matthew Cook is a patient voice at the Teenage Cancer Trust.
- Arriving at a cancer diagnosis is often as difficult as receiving the diagnosis. GPs had suggested he had a hangover, hernia, appendicitis, food allergies and more before he was diagnosed with soft tissue sarcoma. It often takes 4+ visits to get a diagnosis.
- Young people want to be taken seriously so that diagnosis comes early. He would like to see a range of treatments, quality of life and tailored care in an environment appropriate for other young people followed by help with moving on after treatment.
Peter Ford - Prostate Cancer UKBack to top
Peter Ford is a patient voice at Prostate Cancer UK.
- Peter said he was very lucky and was diagnosed with prostate cancer by chance. His biopsy results then took 6 weeks instead of 2. He was given treatment options but no advice. He was lucky to find advice from the charity sector online.
- He would like to see 4 main things:
- Guidelines from the NHS on what to expect in the cancer journey.
- Greater awareness of prostate cancer among the public and GPs
- More specialist nurses
- Patient feedback to help improve the system.
Tim Elliott - Cancer Policy Team, Department of HealthBack to top
Tim Elliott is the team leader of the Cancer Policy Team at the Department of Health.
- Key findings from the most recent National Cancer patient Experience Survey (NCPES) were shared. The results were positive overall.
- Information and communication with cancer patients have shown a significant improvement.
- Patients want a named cancer nurse specialist; confidence and trust in doctors and respect and dignity. A key finding is the importance of written information.
- Financial information about benefits is poor and there are variations in experience among different demographics.
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Jeremy Taylor - National VoicesBack to top
Jeremy Taylor is Chief Executive at National Voices.
- Cancer patients are among those with the best reported experience of NHS care.
- However, there are variations. Specific areas of concern include non-medical issues such as back to work assistance, information for carers and psychological and emotional support.