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Louise Tully is the Macmillan Brain Tumour Support Worker for Worcestershire and Warwickshire.
Louise supports anyone affected by a brain tumour diagnosis. Depending on what the individual needs this includes signposting them to other organisations for additional support. Often what patients and families need most is someone to talk to who understands. Louise says, ‘A brain tumour diagnosis can feel very isolating and by providing emotional support whether through email, by phone, in person or through support groups, we offer that all important listening ear and a chance to meet others going through similar experiences.’ Louise works closely with the wide range of support services offered locally by Macmillan and often refers her patients on to the local Macmillan Benefits Advisers, Macmillan Relate service and Information and Support Services. She says, ‘I feel very lucky to work for Brain Tumour Support and have the support Macmillan provides. My role brings me in to contact with such a wide variety of people and I really enjoy seeing friendships blossom from our support groups and to see firsthand how much benefit people get from sharing experiences with others.’ ‘It’s about providing the right support at the right time. I supported one lady recently who wanted to attend our Worcester support group but lived a distance away and was still keen to travel independently. I researched the appropriate bus journey and times for her to help her get there. I also provided her with some Macmillan information booklets and signposted her to a website that has an animated online character which helped her children to understand about the treatment she was receiving and how she might be feeling.’ Cancer can be the loneliest place, if you have any worries or questions about cancer, visit www.macmillan.org.uk or call Macmillan free on 0808 808 00 00
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© Macmillan Cancer Support 2016
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