3 March 2015
Macmillan Cancer Support is pioneering a programme which hopes to improve the experience of people affected by brain tumours and central nervous system (CNS) cancer.
This is the first Macmillan re-design programme to focus on a rare cancer group. The programme is taking place within North and East Yorkshire and North Lincolnshire localities.
Macmillan have identified that many GPs will only see a patient with a brain tumour or CNS cancer once or twice in their career, as a result diagnosing this rare cancer can be incredibly difficult. Other identified concerns included; ensuring equal access to rehabilitation support across a large rural area, improving access to information and the provision of high quality carer support.
The improvement programme offers an opportunity to view the challenges throughout the patient experience; from diagnosis, treatment, effects of treatment, survivorship and/ or end of life care. The programme which is focussed on people receiving treatment in Hull, will aspire to build on the services that are already in place.
Shaping the future
In November 2014 the programme team held an innovation multi-agency workshop with key programme stakeholders. The ‘Shaping the Future’ event aimed to share the current patient experience , what we have learned to date, what’s working well and where there is potential for improvement.
We asked people affected by cancer and professionals to share their vision for shaping the future of brain tumour and CNS Cancer, including Alison, a person affected by cancer, and Macmillan’s Chief Medical Officer Professor Jane Maher (below).
Alison Coulthard, person affected by cancer
Professor Jane Maher, Chief Medical Officer, Macmillan Cancer Support. NHS Clinical Leader and Consultant Clinical Oncologist
Visit our YouTube channel to view more short clips of professionals sharing their vision for shaping the future of brain tumour and CNS cancer. You are also able to access all the presentations from the ‘Shaping the Future’ event.
Macmillan Cancer Support is currently drawing up formal arrangements with partners that will allow us to continue the development of the programme onto successful implementation and delivery.
For more information contact Helen Sowden, Programme Manager or Laura Boyd, Communications Lead.