Who can help you plan ahead for future care in Northern Ireland?
Planning ahead for our healthcare isn’t something we usually think about. There are healthcare and other professionals who can help you, as well as your family and friends.
The web pages in this section are about the ways people can plan ahead if they live in Northern Ireland. We have other information about planning ahead in England and Wales, and in Scotland.
If we’re well, we don’t expect to become seriously ill. We may assume that we’ll always be able to make decisions for ourselves even when we’re unwell, but this isn’t always the case.
For many people with an illness – especially a long-term illness – planning ahead may feel particularly difficult. You may already be struggling to cope with fears and uncertainties about the future. It’s important that you don’t feel alone when planning ahead. Remember that health and social care professionals can help you, as well as your family and friends.
There are many professionals who can help you with planning ahead. You can ask your GP, district nurse, specialist nurse, social worker or your hospital doctor who is the best person to speak to about planning ahead.
It’s fine for you to raise the subject with one of these professionals. However, it might feel difficult to know how to begin. You may want to start the conversation with something like this:
‘I’ve been thinking about making plans for my future care, just in case something happens to me and I can’t make decisions for myself. I wonder whether you could help me. Or could you point me in the direction of someone who could help me explore what options I have and what I need to do?’
If you’re thinking about making a will, you should contact a solicitor.
Involving people who are close to you, such as your family and friends, can be really helpful. They may be able to help you think through some of the issues, so that you can plan ahead better. It’ll also be good for them to know what your wishes are, so they can help make sure they’re carried out.
If your plans involve your family or friends taking on more responsibility for your care – for example if you want to die at home and need them to look after you – it’s important to discuss this with them. You can ask them whether they think this extra responsibility will be too much for them.
If it is, you can ask your health and social care team for advice. They can tell you more about support that might be available to help them, and about other care options.
Sometimes family and friends don’t want to talk about planning ahead. They may appear to ignore the fact that you want to think about the future, perhaps by playing down your anxieties and changing the subject. If this upsets or hurts you, try telling them. Perhaps start by reassuring them that this is something you want to do and that it will help if you could talk to them about it. You could try saying something like this:
‘I know it’s difficult to talk about this, but I’d really like to chat through how I’d like to be cared for if my health was to suddenly get worse.’
We have more information about relationships and communication when you have cancer, and talking about your cancer.
Amanda talks about her experiences of coping with advanced cancer.
Our Online Community is open 24 hours a day to help you find support. You can share your experiences with people who know what you're going through. Join us at community.macmillan.org.uk