Resources to help you influence local cancer services
Rich pictures series
Macmillan’s Rich Pictures are a collection of key available evidence about the numbers, needs and experiences of people affected by cancer. Some focus on specific cancers such as lung cancer, and others on particular groups of people affected by cancer, such as older people or carers. The information they contain can be used to add weight and evidence to your discussions with professionals and provide you with insight into the lives of people whose cancer experience differs from your own.
Cancer in the UK - State of the Nation report
The State of the Nation report [PDF], shows how the UK is performing on the issues that matter most to people with cancer. It uses information from an evidence review applied to Macmillan’s Nine Outcomes - nine statements which people affected by cancer have told us they want to be able to use to describe their cancer experience such as 'I was diagnosed early' and 'I was treated with dignity and respect.'
Understanding cancer in your area
The Local Cancer Intelligence, combines data, evidence and insights on incidence, survival and mortality figures, as well as patient experience. These are broken down by Clinical Commissioning Groups from Macmillan and the National Cancer Intelligence Network, to help you understand the numbers, needs and experiences of people living with and beyond cancer in your area of England.
Improving cancer services
Your Cancer Care - Macmillan believes everyone affected by cancer should receive care with dignity and respect. To help people know what care they’re entitled to and how they can improve their experience, we’ve created this leaflet on your cancer care [PDF] which provides information on what people with cancer and their carers should expect, and ways people could become more involved, such as providing feedback and discussing their needs and concerns with professionals.
Building and strengthening a common culture of care
Following the Francis Inquiry report into the failings at the Mid Staffordshire NHS Foundation Trust, Macmillan has released its vision [PDF] outlining what we believe needs to happen to make a common culture of care a reality.
We also have a report titled on using cancer patient experience survey data [PDF] which provides a snapshot of approximately 70,000 patient voices every year. The aim is that the CPES results can be used to drive local quality improvements, by trusts and commissioners.
The Dividing Line
The Dividing Line in cancer care for 2030 is a collection of essays exploring the effect of inequalities on the lives of the four million people expected to be affected by cancer in 2030.
Government and NHS policy
The NHS Five Year Forward View considers why change is needed in the NHS in England, what success might look like and how we might get there.
The Forward View into Action: Planning for 2015/16 [PDF] describes the approach for national and local organisations to make a start in 2015/16 towards fulfilling the vision set out in the NHS Five Year Forward View, whilst at the same time delivering the high quality, timely care that the people of England expect today.
The NHS England publications section has many useful resources which you can download.
Cancer patient experience survey in England (CPES)
Macmillan's Insight report and league table 2012 - 2013 [PDF] summarises the CPES results by Trust.
Improving the experience of care for cancer patients - a guide to accessing, understanding and using CPES results produced in partnership with people affected by cancer.
Transforming participation in health and care
This Guide on Transforming participation in health and care [PDF], is intended to help Clinical Commissioning Groups and other commissioners of health and social care, to involve patients and carers in decisions about treatment and care. It summarises various engagement and involvement methods. Although focused on the NHS in England, it will also be useful to service providers, commissioning support staff, patients and carers, voluntary sector groups and organisations interested in patient and public participation.
Useful resources for people affected by cancer in Northern Ireland:
Useful resources for people affected by cancer in Scotland:
Better cancer care [PDF] – an Action Plan and other information about cancer policy in Scotland.
There are currently 3 Cancer Networks in Scotland:
Useful resources for people affected by cancer in Wales:
Other useful websites
The Kings Fund, an English health charity that shapes health and social care policy and practice, provides NHS leadership development, and hosts health care events.
The Health Foundation, an independent charity working to continuously improve the quality of healthcare in the UK.