Tuesday 16th December 2014
Mac Voice, the magazine for Macmillan professionals: Winter 2014
How eHNA supports the NHS's objective to be paperless by 2018
As part of the UK government's information revolution, it wishes to see greater collection and sharing of data and information. It has challenged the NHS to be paperless by 2018. It wants to empower people so that they can make more informed choices about their health, treatment and care. The eHNA process supports this aspiration and aims to give people the personalised care and the information they need to enable supported self management.
Information Governance (IG)
The IG Toolkit is an online system that allows NHS organisations and partners to assess themselves against Department of Health IG policies and standards. One such standard calls for the handling and storage of identifiable patient data to be within the NHS N3 network. Access to this network is restricted to organisations that are compliant with the IG Toolkit, and have reached at least level two. Visit www.igt.hscic.gov.uk
The Health and Social Care Information Centre is the national provider of information, data and IT systems for health and social care. It documents information standards about personal data protection and safety. Specifically, ISB0129 sets clinical risk management requirements for manufacturers of health IT systems and this covers the requirements for eHNA.
Living With and Beyond Cancer: Taking Action to Improve Outcomes details advice for commissioners and providers about the types of services that need to be available for cancer survivors. It starts to develop an evidence base, as a basis for action for commissioners and providers, about what support people living with cancer need, and how that support can be provided in the most cost effective way.
The NHS Outcomes Framework (NHSOF) is used to monitor the progress of the NHS Commissioning Board and to measure the quality of cancer services at a national level. HNA will be essential for achieving the outcomes under Domain 2 (Enhancing quality of life for people with long-term conditions) and Domain 4 (Ensuring that people have a positive experience of care).
The Clinical Commissioning Group Outcomes Indicator Set (CCG OIS) is a key part of the NHS Commissioning Board's approach to quality improvement. Its main aim is to support and enable Clinical Commissioning Groups (CCGs) and health and well-being partners to plan for health improvement by providing information for measuring and benchmarking outcomes of services commissioned by CCGs. It is also intended to provide clear, comparative information for healthcare users and the public about the quality of health services commissioned by CCGs and the associated health outcomes.
Improving Outcomes: A Strategy for Cancer, 2011 puts people with cancer at the heart of cancer services, notably by aiming to reduce the proportion of people who report unmet physical or psychological support needs following cancer treatment. Chapter 5 (Improving outcomes for cancer patients: quality of life and patient experience) acknowledges that people's needs include: psychological support, financial advice, support to self-manage, and information about treatment and care options.
The NICE quality standards are a set of statements designed to measure quality improvements within a certain area of care. HNA is included in some quality standards but is absent in some others, showing that HNA is not yet considered throughout the whole care pathway and for all conditions.
The NHS Scotland Quality Strategy underpins the development of the NHS in Scotland. It has three ambitions related to quality (person-centred, safe, effective), all of which support assessment and care planning through a focus on self management and continuity of care. Quality outcomes two (People are able to live well at home or in the community) and four (Everyone has a positive experience of healthcare) are particularly relevant to HNA and care planning.
The Transforming Care After Treatment programme is being delivered by the Scottish Government in partnership with Macmillan. It's a new work stream of the Scottish Cancer Taskforce and assessment and care planning will be a major part of the programme.
Together For Health – Cancer Delivery Plan sets out the Government expectations of NHS Wales in tackling cancer up to 2016. Local health boards are expected to assign a named key worker, to assess and record the clinical and non-clinical needs of everyone diagnosed with cancer in a care plan. This includes regular assessment of the consequences of treatment, and other needs, such as access to financial, emotional and spiritual advice and support, to ensure a holistic, person-centred approach.
The Service Framework for Cancer Prevention, Treatment and Care sets standards that span the whole care pathway, from prevention through to survivorship. Several standards include performance indicators on HNA and care planning to be achieved over three years to 2014. It was developed by the Northern Ireland Cancer Network on behalf of the Department for Health, Social Services and Public Safety.
Transforming Your Care – A Review of Health and Social Care in Northern Ireland is a 2011 review that set out plans for the transformation of health and social care in Northern Ireland over five years. It promotes joined-up assessment and care planning.
1 Department of Health. NHS challenged to go paperless by 2018. Press release. 16 January 2013
2 Department of Health. Equality and excellence: Liberating the NHS. 2010. London.