Our research summaries

Summaries of academic research projects into people affected by cancer, cancer care services and support, palliative care, cancer survivorship and more, funded by Macmillan Cancer Support.

Research on people affected by cancer

Older women’s experience of breast cancer alongside other health conditions: The EPAN study of women aged 70 years and over.

Julia Addington-Hall, University of Southampton.

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Identifying the impact of service user involvement on the lives of people affected by cancer.

Phil Cotterell, University of Southampton.

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Supporting relatives: An investigation into obstacles and aids to information exchange within families affected by cancer.

Claire Foster, University of Southampton.

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The use of herbal medicines by people with cancer.

Christine Gratus, University of Birmingham.

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Supporting older carers to design and lead research reflecting their key concerns about caring for people with cancer approaching the end of life.

Sheila Kennedy, University of Sheffield.

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I’m just in the shadows to keep an eye: an investigation to understand the need for support in family members of people having chemotherapy.

Emma Ream, King’s College London.

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Social difficulty and appearance concerns in lymphoedema secondary to cancer.

Jacquelyne Todd, University of Bradford.

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Support for people with learning disabilities affected by a person with cancer.

Irene Tuffrey-Wijne, St George’s University London.

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The experience of long-term cancer survivorship: a multiple-case study.

Emma Blows, University of Nottingham.

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Living with cancer in old age.

Nic Hughes, University of Leeds.

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Cancer survivors and cancer survivorship: quantifying cancer prevalence and modelling its dynamics in England and the UK.

Jake Maddams, King’s College London.

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Living with rectal cancer: A study exploring the experiences of individuals living with inoperable rectal cancer and their carers.

Jane Winter, University of Southampton.

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International Benchmarking Project (ICBP.)

Anna Gavin, Queen’s University Belfast.

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A national survey of the impact of cancer on employment.

Ziv Amir, Malcolm Campbell, Linda Davies, Karen Luker, University of Manchester.

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Survivors of adult cancer: a feasibility cohort study/ePOCS electronic patient-reported outcomes from cancer survivors.

Penny Wright, University of Leeds.

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Holistic needs assessment. Evaluation of cancer distress management in Scotland.

Dr Austyn Snowden, University of the West of Scotland.

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Research on services and support

The development and evaluation of an intervention to strengthen family-management of cancer cachexia-related problems.

Jane Hopkinson, University of Cardiff.

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The role of the primary care team in the care and support of patients diagnosed with cancer – perspectives of patients, family members and primary health care professionals.

Eila Watson, Oxford Brookes University.

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Towards an intervention to optimise palliative care in primary care.

Dr Stephen Barclay, University of Cambridge.

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Evaluating the integration of nutritional support into the surgical management of colorectal cancer patients.

Sorrel Burden, University of Manchester.

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Mastering breathlessness in advanced disease.

Morag Farquhar, University of Cambridge.

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Advance care planning for patients with lung cancer.

Gillian Horne, University of Nottingham.

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Living with advanced cancer: an exploration of continuity of care.

Sean Hughes, University of Manchester.

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Survivors of adult cancer – their use of primary services and unmet needs.

Nada Khan, (formerly University of Oxford), Kings College London.

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Development and evaluation of a clinical assessment system for female sexual morbidity in women treated by radical pelvic radiotherapy for cervical or endometrial cancer.

Isabel White, King’s College London.

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The Allograft Information Exchange (ALLINEX).

Penny Wright, University of Leeds.

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Cancer Survivorship: the patient journey, work and working life. Developing, implementing and evaluating an advice and information system for patients in Scotland.

Dr Sara MacLennan, Professor Tom Cox, University of Aberdeen.

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Evaluation of the Midhurst specialist palliative care service.

Monitor Company and University of Sheffield. Ashley Woolmore, Monitor Company Europe. Bill Noble, University of Sheffield.

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The Macmillan Palliative Care Collaborative (MacPaCC)

The Macmillan palliative care collaborative (MacPaCC)

Universities of Edinburgh, Huddersfield, Sheffield, Cambridge, Warwick, in partnership with service users and Macmillan End of Life Care Programme.

Julia Reynolds.

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Pro-active follow-up in primary care from early in the cancer trajectory: the introduction of a framework developed by service users - CORD.

Scott Murray, Marilyn Kendall, University of Edinburgh.

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PACE study: plans and care expectations.

Stephen Barclay and Clare Crang, University of Cambridge.

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Exploring, Understanding and Reducing Emergency Cancer Admissions (EURECA study)

Dan Munday, The University of Warwick.

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Unpicking the threads: How generalist and specialist nurses work with patients, carers and each other in the community to support cancer patients.

Prof Nigel King and Ms Jane Melvin, University of Huddersfield

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Macmillan Survivorship Research Group (MSRG)

The Macmillan Survivorship Research Group (MSRG)

Claire Foster, Univeristy of Southampton.

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Cohort study to explore the recovery of health and well-being following primary treatment (the CREW study)

Macmillan Survivorship Research Group, University of Southampton.

MSRG Stream 1 Project 1.

Claire Foster.

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Development and testing of an online intervention to support self-management of fatigue-related problems following primary cancer treatment.

Macmillan Survivorship Research Group, University of Southampton

MSRG Stream 2 Project 3.

Claire Foster.

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An online survey to assess self management strategies used following primary treatment and barriers and supports to self management.

Macmillan Survivorship Research Group, University of Southampton.

MSRG Stream 1 Project 2.

Matt Breckons.

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Routes from diagnosis

Routes from diagnosis pilot study.

University of Nottingham and Monitor Company Europe.

Kim Edwards, University of Nottingham.

Ashley Woolmore, Monitor Company Europe.

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How does providing an oral history at the end of life influence well-being of the individual and the bereaved?

Dr Michelle Winslow, Sam Smith, University of Sheffield.

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