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Macmillan and Cancerbackup have merged. Together we provide free, high quality information for all.
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The following information on benefits and allowances is correct at the time of printing. However, as these change from time to time, please always check the current situation, and whether you are eligible, from one of the organisations listed below:
To find your nearest Benefit Agency (social security) office, look for the Department for Work and Pensions advert in the business numbers section of the phone book. You can also find numbers there for your local Citizens Advice Bureau or law centre.
You should claim as soon as possible so that your relative or friend doesn’t lose out on any benefits. Payments are usually paid directly into an account of your choice.
This allowance is for people under 65 who need help with personal care (the care component) and/or getting around (the mobility component). There are different levels of payment for each component depending on how much support and care the person with cancer needs.
There are ‘special rules’ for anyone who is not expected to live longer than six months because of an illness. Getting paid under the special rules means:
You can claim on behalf of the person you are caring for. They don't have to be told that the claim is being made for them under the special rules. Payments made under special rules are for a maximum period of three years.
The care component of the DLA can sometimes be paid to someone who is in a hospice, residential care home or hospital.
This allowance is for people of 65 or over who need help with personal care. There is no mobility component. The amount of benefit paid will depend on how much support and care the person needs. Attendance Allowance is also payable under special rules.
Disability Living Allowance and Attendance Allowance are not means-tested and are not taxable.
This is a carer's allowance that is paid directly to you each week if you:
You can’t claim carer’s allowance if you:
For you to receive Carers Allowance, the person you care for must be receiving Attendance Allowance or Disability Living Allowance Care Component (middle or higher rates). It also helps to protect your state pension. Carer’s Allowance may affect other benefits and allowances that you, or the person you care for, are receiving.
If you are eligible for Income Support, this will ‘top-up’ your Carer’s Allowance and will include a carer premium.
This is available if you are aged 16–60 and work for less than 16 hours each week. If you have a partner, they must be working less than 24 hours a week. Your savings have to be below a specified limit.
This is a means-tested benefit for people whose income is below a certain level. There are two parts:
Claimants will qualify depending on their circumstances. For more information call the pension credit helpline on 0800 991 234 or textphone 0800 169 0133.
Income Support and Pension Credit may entitle you to a number of other benefits including Housing and Council Tax benefit, help with NHS costs (prescriptions, hospital fares, dental and optical treatment) and Community Care grants.
This is a payment to support families with children that are still in full-time education or approved training. You do not have to be working to get this.
This is a payment that ‘tops-up’ your earnings if you are working and on a low income, even if you have no children.
These are available from the Social Fund for people on Income Support, Pension Guarantee Credit and Income-based Job Seekers Allowance, and are designed to help people be cared for at home. Grants will be considered for items such as bedding, clothing, a washing machine or drier.
Macmillan Cancer Support| gives more than £8 million a year in grants to people who have cancer or who are dealing with its effects. Grants can be made for home care, sitters, home nursing, travel expenses, holidays, heating, clothing, bedding, telephone installation and domestic bills. It also provides money for smaller items like fans, heaters and liquidisers (for people on liquid diets).
Application for a grant has to be made through a Macmillan nurse, social worker or district nurse. Grants are not made to single people who have savings of more than £6000 or couples with savings of more than £8000. Your household disposable income should be under £100 per person per week.
You may be able to get some financial help from charities. A useful book which gives details of all the charities and what they provide is A Guide to Grants for Individuals in Need. Most libraries have, or can get, a copy of it. Many trades unions and professional organisations also have benevolent funds which can provide financial help and advice. Details are in The Charities Digest which is held in most libraries.
The Association of Charity Officers| is an organisation that tries to help people find charities that may be able to offer some financial assistance. Using information about your relative or friend, such as their occupation, religion and where they live, the association can usually find relevant charities to help.
If you, and/or the person you are caring for, are employed, the human resources, personnel or welfare officer at your workplace can be an important source of information and help.
If you have a mortgage and are having difficulty paying it, contact the manager of the building society or lender as soon as possible and explain what has happened. They may agree to suspend payments for a while to give you time to sort yourself out, or suggest that you pay only the interest on the loan for a while. Another solution is to extend the term of the mortgage so that you have less to pay each month.
If you are claiming Income Support, you might be able to get help with paying the interest on your mortgage from the Department for Work and Pensions.
If the person you are caring for is unable to manage their financial affairs, they can give you Power of Attorney. This means that you have the legal right to act on their behalf. Obviously, you will need to discuss this. Although it may be more convenient on a practical level, the person you are caring for may find it difficult emotionally to hand over to you formally like this.
If they are not capable mentally of making the decision to give you Power of Attorney, you will have to either apply to the Court of Protection (if you live in England or Wales) or the Public Guardian (if you live in Scotland), before you can act on their behalf. If you need advice, contact a solicitor, your local Citizens Advice Bureau or law centre.
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If you have any questions about cancer, need support or just want someone to talk to, ask Macmillan.
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