Treatment for primary bone cancer
The treatments used for primary bone cancer are surgery, chemotherapy and radiotherapy. Most people will need a combination of different treatments.
Surgery is a very important part of treatment and is used to remove the tumour in the bone.
Chemotherapy is used as part of the treatment for most osteosarcomas and spindle cell sarcomas. Nearly all Ewing’s sarcomas are treated with chemotherapy.
It’s often given before surgery (neoadjuvant chemotherapy) and after surgery (adjuvant chemotherapy). Giving chemotherapy before surgery helps to shrink the tumour, making it easier to remove. After surgery, chemotherapy is given to destroy any cancer cells that may have been left behind.
Radiotherapy may be used to treat some types of bone tumour. It is usually given after surgery or chemotherapy. It may also be used in situations where surgery isn’t possible.
Radiotherapy is particularly effective in treating Ewing’s sarcoma. It’s less effective in the treatment of osteosarcoma, chrondosarcoma and spindle cell sarcoma, so it isn’t often used for these types of bone tumour. However, it can be helpful in certain circumstances.
Specialist treatment centres
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Your treatment will usually be planned and given in sarcoma treatment centres (sometimes called sarcoma units).
This will either be one hospital or a group of hospitals that are close to each other and that work together. Sarcoma treatment centres specialise in treating people with primary bone tumours and soft tissue sarcomas.
Because primary bone cancer is rare and there are only a small number of sarcoma treatment centres in the UK, you may need to travel quite a long distance to reach one. However, sometimes it’s possible to have chemotherapy and radiotherapy treatments at a hospital closer to home. In this situation these treatments will be planned and given by a specialist cancer doctor (oncologist) who will work closely with the doctors at the sarcoma treatment centre.
A team of specialists called a multidisciplinary team (MDT) will meet to discuss which treatments are best for your situation.
The specialists in the team will have expert knowledge about bone cancer.
The MDT will include:
a surgeon who specialises in bone cancers
a radiologist (a doctor who reads and interprets x-rays and scans)
a pathologist (a doctor who examines samples from the tumour to see if it’s a cancer and which type it is)
a medical oncologist (a chemotherapy specialist)
a clinical oncologist (a specialist in radiotherapy and chemotherapy)
a paediatric oncologist (a doctor who specialises in treating children with cancer) if appropriate
a key worker, who will be your main contact and will make sure you get help and support throughout your treatment - this may be a specialist nurse or other healthcare professional, such as a physiotherapist.
The team may also include other healthcare professionals, such as an occupational therapist, dietitian, psychologist or counsellor.
Teenagers and young adults (TYA)
Some hospitals have teenage cancer units (sometimes called TYA units), which are specially designed for teenagers and young adults. Other hospitals may have special wards or areas for you if you’re a teenager with cancer. There may be video games, DVDs and music to help you feel more at home. You may have access to a computer so that you can do some of your school or college work if you feel well enough. There may also be education specialists who can stay in touch with your school or college and support your learning needs while you’re having treatment.
Most wards for teenagers allow someone to stay with you. This is usually your parent or guardian but can also be a partner, friend or other family member, as long as they’re over 16 and are well.
In some hospitals there isn’t a special ward for teenagers with cancer, so you are treated on an adult cancer ward. The staff on the adult cancer wards will still be able to look after your needs, although the facilities may not be the same as those on a unit specially designed for teenagers.
Children’s cancer centres
If your child has a bone cancer, they will be treated in a hospital, or a part of a hospital, that specialises in diagnosing and treating children’s cancers. These are sometimes called principal treatment centres.
These are relaxed and friendly places, and they aim to give you and your child as positive an experience as possible. You’re likely to get to know the staff well. Almost all children’s wards have facilities where parents can stay.
There will also be support staff such as play therapists in the hospital. Play therapists use play to help children cope with the experience of being ill. Children’s cancer centres also have teachers and most have education departments. Teachers at the hospital will contact teaching staff at your child’s school to make sure that they can continue their education whenever they feel well enough. It’s even possible for children to take exams in the hospital if needed.
If your child isn’t able to go back to school soon after they go home, tutoring can often be arranged with the local education authority. The person responsible for your child’s schooling while they are in hospital will be able to organise this for you.
How treatment is planned
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The MDT will take a number of factors into account when advising you on the best course of action for your treatment, including your age, general health, the type and size of the tumour, and whether it has begun to spread.
If two treatments are equally effective for your type and stage of cancer, your doctors may offer you a choice of treatments. Sometimes people find it hard to make a decision. If you’re asked to make a choice, make sure that you have enough information about the different options, what is involved and the possible side effects, so that you can decide on the right treatment for you.
Many people with primary bone cancer will also be offered the opportunity to take part in a research trial. These research trials help doctors find new and better treatments for people who have primary bone cancer. If your doctor thinks you are suitable for a clinical trial they will discuss this with you.
Remember to ask questions about any aspects of your treatment that you don’t understand or feel worried about. It may help to discuss the benefits and disadvantages of each option with your cancer specialist, key worker or nurse specialist, or with our cancer support specialists.
If you do have any questions about your treatment, don’t be afraid to ask your doctor or nurse. It often helps to make a list of questions and to take a relative or close friend with you.
The benefits and disadvantages of treatment
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Many people are frightened by the idea of having cancer treatments, particularly because of the side effects that can occur. However, these can usually be controlled with medicines.
Treatment can be given for different reasons, and the potential benefits will vary depending upon your individual situation. In people with early-stage bone cancer, treatment is often done with the aim of curing the cancer. You may also be given additional treatments to reduce the risk of it coming back.
If the cancer is at a more advanced stage, the treatment may only be able to control it, improving symptoms and quality of life. However, for some people in this situation the treatment will have no effect upon the cancer and they will get the side effects without any of the benefit.
If you’ve been offered treatment that aims to cure your cancer, deciding whether to accept it may not be difficult. However, if a cure is not possible and the purpose of treatment is to control the cancer for a period of time, it may be more difficult to decide whether to go ahead.
Making decisions about treatment in these circumstances is always difficult, and you may need to discuss in detail with your doctor whether you wish to have treatment. If you choose not to have it, you can still be given supportive (palliative) care, with medicines to control any symptoms.
Before you have any treatment, your doctor will explain its aims. They will usually ask you to sign a form saying that you give permission (consent) for the hospital staff to give you the treatment. If you’re a parent and your child is under 16 and needs treatment for bone cancer, the doctor will ask you or your child to sign the consent form. The law about children consenting to treatment is very complicated, so do discuss any concerns you have with the doctor.
No medical treatment can be given without your consent, and before you are asked to sign the form you should be given full information about:
the type and extent of the treatment
its advantages and disadvantages
any significant risks or side effects
any other treatments that may be available.
If you don’t understand what you’ve been told, let the staff know straight away so they can explain it again. Some cancer treatments are complicated, so it’s not unusual for people to need repeated explanations.
It’s a good idea to have a relative or friend with you when the treatment is explained, to help you remember the discussion. You may also find it useful to write a list of questions before your appointment.
People sometimes feel that hospital staff are too busy to answer their questions, but it’s important for you to know how the treatment is likely to affect you. The staff should be willing to make time for your questions.
You can always ask for more time if you feel that you can’t make a decision when your treatment is first explained to you.
You are also free to choose not to have the treatment. The staff can explain what may happen if you don’t have it. It’s essential to tell a doctor or the nurse in charge, so they can record your decision in your medical notes. You don’t have to give a reason for not wanting treatment, but it can help to let the staff know your concerns so they can give you the best advice.
Your multidisciplinary team uses national treatment guidelines to decide the most suitable treatment for you. Even so, you may want another medical opinion. If you feel it will be helpful, you can ask either your specialist or your GP to refer you to another specialist for a second opinion. Getting a second opinion may delay the start of your treatment, so you and your doctor need to be confident that it will give you useful information.
If you do go for a second opinion, it may be a good idea to take a relative or friend with you and have a list of questions ready, so that you can make sure your concerns are covered during the discussion.