Wednesday 3rd April 2013
Macmillan General Manager Allan Cowie explains why the time is right to launch Scotland’s programme to transform care for people living with and beyond cancer.
The number of people living with or beyond cancer in Scotland is predicted to almost double from the current 190,000 in 20 years.
This changing cancer demographic is reinforced by the Scottish government’s Detect Cancer Early initiative, which is expected to lead to improved outcomes.
The Scottish Cancer Taskforce’s Living with Cancer group held an event in 2009 to identify the priority issues. The majority were the same as elsewhere in the UK, and demanded a Scottish response similar to cancer survivorship initiatives in England and Northern Ireland.
Macmillan in Scotland is investing £5 million over the next five years to support a redesign of care following active treatment of cancer. It will work in partnership with the Scottish government and the three regional cancer networks. As with similar programmes elsewhere in the UK, the aim is to ensure that Scots diagnosed with cancer are prepared for, and supported to live with, the consequences of the diagnosis and its treatment.
Work to date across the UK has identified principles of future practice that should be integral elements of all new models of cancer care after treatment. Reflecting these principles, the Transforming Care After Treatment programme will focus on:
- Redesign of current models of cancer follow-up.
- Development and implementation of personalised care plans.
- Managing the transition between acute care and home.
- Enablement and support for effective self-management.
Delivery will be through a network of test sites across Scotland – active partnerships between people affected by cancer, health, social care and the third sector. The programme board, chaired by Jeff Ace, Chief Executive of NHS Dumfries & Galloway, includes senior representation from Health Boards, Macmillan, the three cancer networks, consultant nurses, primary care and social care. It will direct and support delivery of the programme, reporting directly to the Scottish Cancer Taskforce.
Measures of success
The success of the programme will be measured against the delivery of four key objectives:
- Reshape the provision of care to provide capacity for the predicted increase in cancer incidence and prevalence.
- Promote and initiate an integrated, sustainable approach to the provision of care involving health, social care and third sector partners that drives a shift in focus from treating the disease to health and well-being.
- Create a culture of confidence in patients and professionals that supports people to regain control of their lives, facilitates self-management, develops new approaches to surveillance and reduces unnecessary reviews.
- Facilitate shared decision-making with people in cancer follow-up programmes that promotes co-design of high-quality, safe continuing care.
Redesigned models of care will be based on informed choice and deliver a service fit for the future, which facilitates recovery of function, confidence and morale.
Contact Allan Cowie, Macmillan General Manager for Scotland.