References for Sharing good practice, winter 2012

 

References for Holistic needs assessment and care planning - introduction|

1. Armes J et al. Patients’ Supportive Care Needs Beyond the End of Cancer Treatment: A Prospective, Longitudinal Survey| [PDF, 114kb]. Journal of Clinical Oncology. 2009. Vol 27; No 36.

 

2. Vision| [PDF, 1.44MB]. 2010. National Cancer Survivorship Initiative.

 

3. Improving Outcomes: A Strategy for Cancer| [PDF, 1,007KB]. 2011. Department of Health.

 

4. Stratified pathways of care…from concept to innovation| [PDF, 1.64MB]. 2012. NHS Improvement.

References for Evidence base| 

1. Department of Health. National Cancer Experience Survey 2011/12 National Report| [PDF, 4.16MB]. August 2012.

 

2. Armes J et al. Patients’ Supportive Care Needs Beyond the End of Cancer Treatment: A Prospective, Longitudinal Survey| [PDF, 114KB]. Journal of Clinical Oncology. 2009. Vol 27; No 36.

 

3. Ream E et al. Supportive care needs of men living with prostate cancer in England|. British Journal of Cancer. 2008. 98; 1903–1909.

 

4. Hodkinson K et al. Breast cancer survivors supportive care needs 2–10 years after diagnosis|. Supportive Care Cancer. 2007. 15: 515–523.

 

5. Richardson A, Medina J, Brown V, Sitzia J. Patients’ needs assessment in cancer; a review of assessment tools|. Supportive Care Cancer. 2007.

 

6. Brennan J et al. Refinement of the Distress Management Problem list as the basis for a holistic therapeutic conversation among UK patients with cancer|. Psycho-oncology. 2011. Online10:1002/pon.2045.

 

7. National Patient Access Team. Holistic Common Assessment of Supportive and Palliative Care Needs for Adults with Cancer – Assessment Guidance| [PDF, 659KB]. 2007.

 

8. Caryl D Fulcher et al. Distress Assessment: Practice change through guideline implementation|. Clinical Journal of Oncology Nursing. 2007. 11:817–821.

 

9. Dabrowski M et al. Clinical experience with the NCCN distress thermometer in breast cancer patients|. Journal of the National Comprehensive Cancer Network. 2007. 5(1): 104–111 33.

 

10. National Comprehensive Cancer Network is based in the US and represents 21 of the world’s leading cancer centres working together to improve the quality, effectiveness and efficiency of cancer care.

 

11. Gessler S et al. Screening for distress in cancer patients: is the distress thermometer a valid measure in the UK and does in measure change over time? A prospective validation study|. Pscho-Oncology. 2008. 17: 538–547.

 

12. Velicova G et al. The clinical value of quality of life assessment in oncology practice – a qualitative study of patient and physician views|. Psycho-Oncology. 2008. 17: 690–698.

 

13. National Cancer Survivorship Initiative. Assessment and Care Planning – Lessons Learned| [PDF, 72KB]. November 2010.

 

14. G. Velikova et al. Automated Collection of Quality-of-Life Data: A Comparison of Paper and Computer Touch-Screen Questionnaires|. Journal of Clinical Oncology. March 1999. Vol. 17 no. 3 998.

 

15. Bodil Wilde Larsson. Touch-screen versus paper-and-pen questionnaires. Effects on patients’ evaluations of quality of care|. Division for Health and Caring Sciences, Karlstad University, Karlstad, Sweden.

 

16. National Patient Access Team. Holistic Common Assessment of Supportive and Palliative Care: Needs for Adults with Cancer – Assessment Guidance| [PDF, 660KB]. January 2007.

 

17. Canadian Partnership Against Cancer. Guide to Implementing Screening for Distress, the 6th vital sign| [PDF, 1.2MB]. 2009.

 

18. Ganz P et al. Implementing a Survivorship Care Plan for Patients with Breast Cancer|. American Society of Clinical Oncology. 2008.

 

19. National Patient Access Team. Holistic Needs Assessment for People with Cancer: A Practical Guide for Healthcare Professionals| [PDF, 1.76MB]. 2011.

 

20. Hahn E & Ganz M. Survivorship Programs and Care Plans in Practice: Variations on a theme|. Journal of Oncology Practice. 2011. Vol 7, Issue 2: 70–74.

 

22. Claire Morris. Report from 1st HNA workshop| [PDF, 266KB]. November 2009. National Patient Access Team.

 

23. Maguire P & Pitceathly C. Improving the psychological care of cancer patients and their relatives: The role of specialist nurses|. Journal of Psychosomatic Research. 2003. 55; 469–474.

 

24. Richardson A. Finding the time for teams to undertake holistic needs assessment. Poster presentation from Southampton University Hospitals NHS Trust| [PDF, 1.69MB].

 

25. Jenkins K et al. Beyond communication: The development of a training program for hospital and hospice staff in detection and management of psychological distress – Preliminary results|. Palliative and Supportive Care. 2010. 8, 27-33.

 

26. Rollnick S, Butler C, Kinnersley P, Gregory J, Mash B. Motivational Interviewing|. BMJ.

Continue reading Sharing good practice

Part one - Holistic needs assessment and care planning|

An introduction by Noëline Young.

 

Part two -  Secondary care perspective|

Dr Alastair Smith, Honorary Consultant Haematologist and Clinical Adviser for Macmillan Cancer Support.

 

Part three - Test site perspective|

Louise Smith, Cancer Information Specialist and Centre Manager and Ipswich Project Lead for Survivorship

 

Part four - Evidence base|

Anne Wilkinson, National Improvement Lead, NHS Improvement

 

Part five - Policy|

Relevant policy documents.

 

Part six - Resources|

Relevant resources.